Everyone that is emailing me is calling me Sherilyn my name is erin and Im
not sure why everyone is calling me this how can I fix the problem erin
>From: Karla N <ifirgit@yahoo.com> >Reply-To: adhesions@adhesions.org >To: Multiple recipients of list ADHESIONS ><adhesions@mail.medispecialty.com> >Subject: Re: Welcome Sherilyn >Date: Thu, 16 May 2002 10:11:41 -0500 > > If I had any hopes of being able to have an adhesiolysis done with the >use of SprayGel I would have jumped on an airplane about a month ago and >gone to Germany. The doctors are so excited about SprayGel and the results >that they are having...at the same time no doctors would even comment on >the Intergel. This alone speaks so much to me. Just looking at the >results of Mary's surgery says volumes. Mary was on her third trip to see >Dr. Korell as each time her adhesions had returned. They used SprayGel on >Mary and yes, she did have 20% reformation, but it was in an area where >SprayGel had not been used. In my opinion, people should be rushing over >to Germany to have the opportunity to have the SprayGel used. I do believe >that there is another center over there that is having very good results. >I believe it is in Frankfurt. Hmmmm.....if I could just find some doctor >to fix my problems I'd be there in a second...taking my daughter back to >her birthplace. But, back to pe! >ople rushing over there.....this is the best that there is....there is real >hope! It is very likely that the US government will not approve the use of >SprayGel except in GYN cases. That means that if you have had your female >organs removed you are out of luck. Why do I make the statement about GYN >cases?? Because the trials have only been authorized for GYN cases. The >same thing occured with Intergel....and Intergel was only approved for use >in GYN cases. >Karla > Jo Eslick <joanne@bombobeach.com> wrote: It is never easy to give >straight answers about adhesions Sherilyn, and >all I can say to start with is, I am happy you found us, because now at >least you know you are not alone. > >Unfortunately the only way to get rid of adhesions is through surgery, >and you will find that many many doctors won't consider a surgical >option unless the adhesions are life threatening or seriously >debilitating due to pain. > >If you did find a surgeon who was willing to perform surgery to remove >the adhesions, there is no absolute guarantee that they won't return. > >A few things popped up as I read your letter; firstly you haven't >mentioned pain or discomfort, but unsightliness.... Oh yes, I see you >have mentioned "some problems" following problems in the "female area". > >To be honest Sherylin, you are right, the adhesions are bulky and they >can give you an odd shape. I recently underwent five & a half hours of >surgery to take down adhesions and to remove what my surgeons were sure >was an ovarian remnant & cyst. It ended up being several loops of my >bowel wrapped around the top of my vaginal vault. > >I tend to lean towards pain management than surgery at this time; >because there is no sure fire cure for adhesions. Some people have had >some success with adhesion barriers and different countries use >different types or brands. Many are pinning their hopes on a new one, >which is called "spray gel", BUT it hasn't really been able to show >enough positive results to excite my surgeon for example. > >I had surgery because my health was in decline & my pain levels rapidly >increasing and surgery was my last resort. I still have a large number >on my left side to remove, so my rummy looks very lopsided at the >moment. I had them removed from my abdominal wall starting at my rib >cage right down the front of my abdomen and then across to the right >side, un hooking and removing adhesions just micro millimetres away from >my bowel. > >The surgery was stopped because my vital signs were showing that my body >had had enough surgery for that time. My surgeon estimates there is >probably still at least three and a half hours of surgery left to do on >the left side to remove dense adhesions to use is words "cement city". > >So as usual I have been long winded to get to my point, which is I have >found a huge difference in how my clothes are fitting and had countless >comments about the amount of weight I have lost. I looked like I was >pregnant basically from under the breasts my stomach rolled out to what >I would say a good six to seven month pregnancy stage.... it isn't >perfect, but it looks better & I no longer suffer from a terrible >dragging feeling that I had experienced prior to surgery. > >I urge you to think long and hard before consider surgery, do as much >research as you can stand, ask us as many questions you like and read >our stories on the adhesions quilt. The more surgeries you have, often, >the worse your actual pain and condition will get. > >I have been fortunate to find an excellent "team" of doctors and health >care professionals here in Australia and currently I am enjoying an >improvement on the quality of my life, level of pain and ability to be >more involved with my family as a mother should. However, I am under no >illusions that I will live happily ever after, but I will take what I >have and make the most of it for as long as possible. > >Once again, welcome Sherilyn to the board - I look forward to your >future posts! > >-- >Love and gentle hugs, >Joanne Eslick >Founder Australian Adhesions Support Group >http://www.bombobeach.com >Australian Co-ordinator of >International Adhesions Society >http://www.adhesions.org > >-- >I am not a medical person, and all my messages are based >on personal experience. I am a fellow adhesions sufferer >reaching out to help others. > >LAUNCH - Your Yahoo! Music Experience