To Robin from Jo
From: Jo Eslick (joanne@bombobeach.com)
Wed Jun 26 08:48:32 2002
Hi Robin!
I just had to write and say “good for you”!!! Don't let those doctors
fob you off now... from what you said in your message, you are sick,
there IS something wrong, if adhesions haven't been "officially"
diagnosed, it's time to start demanding answers.... as I said to you
before.
Don't forget, if you need to "chill out", soak up a sea breeze and some
soft gentle company, drop by the Aussie support site http://www.bombobeach.com
and surf around for a while. There is the BEACH CLUB CHAT room, the
NOTE PAD that is a message board like this, just a slightly different
set up! You can register as a member and receive site updates and
interesting tid pits every once in a while.
There is also an area called "How to Cope" and I invite you and anyone
else who happens to read this message.... write to me with your way to
cope, and if it isn't already listed somewhere on bombo, then it will
get posted and you will get the credit for it! ;-) There is a poetry or
short story area. Tell us about a favourite childhood memory, or give
us a poem describing your pain or your will to overcome disability and
the "stigma" attached to that.
Dr Wiseman has done a fantastic job here.... providing us with great
information and links to other sites containing the latest information
about adhesions and research. The Adhesions quilt holds a HUGE number
of stories about adhesions sufferers around the world. We have a
section on bombo called "Our Stories" and you are welcome to record your
story on NOTE PAD first, email any art work, photo's etc that you want
us to use to decorate your page, and the admin team at bombo will help
you.
You aren't alone, and now you are armed with information, you can
confidently steer your treatment in the direction that is best for you!
Not what the doctor "thinks" you need....
Stay in touch, we are here always, no matter what you decide to do.
Don't forget that Wednesday Night from 8pm to 10pm USA Eastern Standard
time, is BEACH CLUB CHAT time for US & Canadian adhesions friends and
guests. Log into the chat room via bombobeach, as the link here on the
IAS isn't working properly... we are working towards fixing the
problem... Maybe I will meet you tomorrow night in the BEACH CLUB CHAT
room!
--
Love and gentle hugs,
Joanne Eslick
Founder Australian Adhesions Support Group
http://www.bombobeach.com
NSW Australian Co-ordinator of
International Adhesions Society
http://www.adhesions.org
--
I am not a medical person, and all my messages are based
on personal experience. I am a fellow adhesions sufferer
reaching out to help others.
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