Re: To Annie H

From: Lynn Creacy (anonymous@medispecialty.com)
Mon Aug 5 14:21:21 2002


At Mon, 5 Aug 2002, Robin M wrote: >
>Dear Annie,
>I was also dejected by the DR that used seprafilm on me in August last
>year. I had pain releif for 3 weeks, but still had a small amount of
>pain. Then it kept getting worse. The Dr told me there was nothing
>left for him to do. I live in the USA. I recently had hernia surgery &
>am waiting for time to pass so I can go have surgery with DR Korell in
>Germany with the spraygel. I had surgery with him before in Nov 2000,
>with intergel. I had 50% reduction the first surgery & after the 2nd
>look lap, I came home knowing I would have 15-30% reformation. The
>intergel helped me a whole lot more than seprafilm & the surgery was
>less evasive. Jo, that has Bombo Beach adhesion site that lives in
>Austrailia, just had surgery with spraygel. Maybe you can find out
>where she had her surgery in Australia & go there instead of to Germany.
>Just a thought.
>I wish you luck,
>robin M
>Could someone please tell me how to go about going to Germay to have surgery? I really would like to get more information on this. Please please someone tell me everything or how to get all of the information.

lots of hugs Lynn >At Mon, 5 Aug 2002, Annie Hawksley wrote:
>>
>>Dear Helen,
>>Thankyou for your email. Firstly let me tell you that I live in
>>Australia. Spraygel is being used out here & my Dr is ready to do his
>>first case. He said that he could not use it on me because I have no
>>abdominal cavity???/ space left. Also he will not use the lapascope on
>>me due to danger of rupturing organs/adhesions. On my visit a week ago
>>I left his rooms feeling quite dejected as I think he is trying to give
>>me the run around- go see dr so & so he/she maybe able to help. I have
>>been under this Dr since 1995 & he always has helped me but since the
>>last op when he placed Seprafilm around my bowel & 3 weeks later I had
>>another bowel obstruction. Obvisously not a success story. My story is
>>similar to all adhesion suffers but I have been suffering since I was
>>14yrs (38yrs ago!!). Could you advise me on how to find info on DR
>>Korell, & how they decide whether you are a candiate for their surgery
>>or not?? If only I could get some relief somehow.
>>God Bless
>>Annie
>>
>>At Mon, 5 Aug 2002, Helen Dynda wrote:
>>>
>>>Dear Annie,
>>>
>>>Did your doctor tell you WHY you are not a candidate for SprayGel? Is it
>>>possible that your doctor has confused SprayGel with Intergel?
>>>
>>>SprayGel is not even available in the United States yet!! Clinical
>>>trials - involving the use of SprayGel - are currently underway in the
>>>United States. It will take at least a year or more before SprayGel
>>>clinical trials will have been completed.
>>>
>>>Intergel was approved for use in open abdominal procedures in November
>>>2001; and is currently available for use in laparotomy procedures.
>>>
>>>~ ~ ~ ~
>>>
>>>At Sun, 4 Aug 2002, Annie Hawksley wrote:
>>>>
>>>>Dear Cynthia, I read your message today & understand what you are going
>>>>thru. I have also suffered from at least 50 (probably more as I have
>>>>lost count) bowel obstructions since
>>>>having my appendix out 38 yrs ago (aged 14). I developed
>>>>adhesions,endometoris, & heeps more. I have had a total of 22 ops, plus
>>>>about 8 lapascopes. In June my Dr did surgery for freeing the adhesions
>>>>& used a barrier known as Seprafilm. My hopes were extremely high but
>>>>within 5-6 days of the op the pain had returned. I tried to ignored it
>>>>but 3 weeks post op guess what?? yes there I was in emergency with a
>>>>full blown bowel obstruction - the vomiting, the nausea, the colic
>>>>everything. I haven't fully recovered as yet.The pain worsens every day
>>>>& my Dr says I am not a candicate for the new product Spraygel. I am
>>>>doing a lot of thinking & research,etc to see what my next move will be
>>>>& where I go. I am in the middle of writing my story & I will post it
>>>>as soon as I've written it. My God bless you & keep you comfortable.
>>>>Keep in touch. Regards Annie
>>>>
>>>>--
>>>>Annie H
>>>>
>>--
>>Annie H
>>


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