Re: Meds and diet

From: Karla (ifirgit@new.rr.com)
Sat Aug 24 00:47:23 2002

I have been on many, many different meds. I finally was able to receive some relief that at least makes my pain somewhat bearable from MS Contin and Vicodin for breakthrough pain. I can easily tell you that yes, my pain is probably being masked....but at this point I don't much care....at least I am able to function somewhat, whereas I would be continuously bound to my bed if not given these drugs. My doctors and I know what my problems are....they know what they are masking, but I CANNOT have anymore abdominal surgery and I will not spend whatever remaining days I have lying in bed in pain unable to enjoy my grandchildren and the world around me. As far as addiction goes...there is addiction and there is dependence...and that is a big difference. There are many people in this world who do not receive appropriate relief from most narcotics, yet alone non-narcotics. We deserve to live our lives as pain free as possible. Yes, at some point many of us will have to undergo treatment for our dependence and I realize that is not a pleasant experience, but that is something that I will gladly go through if I can avoid spending another day in pain.

Every individual is different. Of course doctors should experiment with non-narcotics...if it is appropriate, but so many of us have worked through the entire regime of drugs and are left with very little help. My MS-Contin and vicodin make my life liveable...that is what is important to me. 

--
Karla


Somewhere up in the stars.................
My angel and me!


http://www.geocities.com/karlasfamily2001
http://www.geocities.com/princessd82000/BraydensHaven


>  ----- Original Message -----
  From: Bo Wimmer
  To: Multiple recipients of list ADHESIONS
  Sent: Wednesday, August 21, 2002 3:25 PM
  Subject: RE: Meds and diet


  I realize that all pain meds do not work for everyone.  All I am trying to say is take an active preventative type of outlook.  What I did changed my life completely.  I do have break through times, but they are very few and far in between.


  1.  Use a heating pad, warm to hot bath, or peppermint oil over the areas that hurt.  Peppermint oil is wonderful to help with the deep pain.


  2.  Be proactive.  If it just barely starts to hurt, take something or do something don't wait until its too late.  Your body acts off nerves and endorphines (Pain Receper/Responder).  If you fack out the nerves or endorphines ahead of time, they are less likely to "Flare Up" as much.


  3.  Your diet should not have any effect on the pain.  I drink tons of caffine and eats lots of veggies and the only real problem I have is pain from Blotting then it makes the adhesions flare up so I take gas x or beano before I eat these things.


  I lived in misery for almost 4 years.  The last year I could not work and I was in so much pain I thought I had cancer in my cervix/pelvis tummy area.  Like a knife.  These things worked for me and may not work for you, but anything is worth a shot.


  Remember the main cause for pain in endometriosis is the presence of pitocin.  This causes the contractions and pain.  With adhesions, mere bloating can make them act up so be sure what your treating and what your symtoms are.
    -----Original Message-----
    From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]On Behalf Of Nancy E. Hale
    Sent: Wednesday, August 21, 2002 2:14 PM
    To: Multiple recipients of list ADHESIONS
    Subject: Meds and diet


    Robin made a very good point - medications work differently for each of us.  By the same token, we all share some symptoms, but differ in others.  Personally I have little to no bowel problems, other than being "slow" to move.  I also don't find that what I eat affects the pain levels.  I drink at least 5 to 6 cups of coffee a day, but on the days that I don't drink that much, the pain does not decrease any.  Then again, I am able to indulge in fresh fruit and veggies, and I know some on the list cannot do so without agony.


    As for pain control, Naproxen does not help my pelvic pain at all, but it does ease the joint tenderness and swelling that I have started experiencing the past few months.  For the ARD pain, I use Oxycontin with Percocet for breakthrough.  So far, so good - it has been effective in reducing the pain to a manageable level without significant side effects.  I know some have not been that lucky, and have had serious side effects to these meds.


    Welcome to all the newcomers, and my apologies for not being here to respond sooner.  Unfortunately, my pain levels have not allowed me to "be" here as much as I would like.  I am "in training" at this moment to enable me to moderate the Bombo Beach chat room this evening at 8:00 p.m. EST.  Hope to see you there.


    Gentle pain-free hugs to all.


    Nancy in NB


    Help spread the word. Find out more about National Invisible Chronic Illness Awareness Week September 23-29, 2002, at http://www.invisibleillness.com

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