Re: What's happening?

From: Tami (tamitorres@hotmail.com)
Tue Aug 27 21:00:23 2002


Dear Karla, I am so sorry about all your pain. I don't understand why you are not a canidate for the dialysis. I applaud your courage. I am having surgery in October to repair the hole in my intestines at the appendix on the right and have all my adhesions removed on the left side(yet again). I just thought while I was in surgery if you needed a kidney or something they might as well take it, if it could help you. I have given this surgery alot of thought (it's my 12th) and as much as I know the adhesions will return, I feel I have to give it a try. I am just so tired of the pain, and so ready for relief. This surgeon is going to place (I think its Intraceed or something to that effect, webbing) all inside of me after he cleans up the adhesions. He told me it is made up of the same stuff the SprayGel is. Only the SprayGel is better because it can get everywhere inside. I had this stuff placed before between my vagina and rectum when they had completely adhesied together in 1999. I haven't had the adhesions come back there since that surgery. My pain meds aren't working. I wish there was something more they could do to help you. Your body has been thru so much. I am glad you have the support of your family. Take care Dear Karla and keep in touch. Wishing you pain free days Love, Tami

At Tue, 27 Aug 2002, Karla wrote: >
>Tami,
>
>My family was told that I was not a candidate for transplant. They do not
>believe that I would live through another surgery and no one is willing to
>try. They were also told that I am not a candidate for dialysis. After a
>lot of consideration, I have decided that I cannot and will not put myself
>through any more of the surgeries. I am not talking about the placing of
>stents, etc, although my urologist has said that they will not be doing
>anything more than replacements every couple of months as necessary. The
>risks are too great for me. I am now listed as DNR on my hospital records.
>I do not want any attempts made to revive my heart should it stop, nor will
>I allow the use of a respirator. My doctor has been in total agreement. He
>asked me just how much more I wanted to go through. It isn't that I am
>giving up....I just don't want any heroic efforts made that might prolong my
>life into something that I don't want to live.
>
>Thank you so much for your generous offer. It is most
>gracious....particularly given that it would once again expose you to more
>of our little devil pain...adhesions. God is watching over and blessing you
>and your family. I pray that he protects you from all evil and puts an end
>to your devil pain.
>
>Love
>Karla
>
>Somewhere up in the stars.................
>My angel and me!
>
>http://www.geocities.com/karlasfamily2001
>http://www.geocities.com/princessd82000/BraydensHaven
>

>>>----- Original Message -----
>From: "Tami" <tamitorres@hotmail.com>
>To: "Multiple recipients of list ADHESIONS"
><adhesions@mail.medispecialty.com>
>Sent: Monday, August 26, 2002 4:37 PM
>Subject: Re: What's happening?
>
>> Dear Karla,
>> I was glad to hear you again on this message board, I was just asking on
>> here last week if anyone had heard from you. Karla, I wanted to ask you
>> a question because I don't recall you ever mentioning it before, but
>> have you ever been told you will need a kidney transplant? I don't even
>> know if you are a canidate for one or not. I know you have had years of
>> problems with your kidneys and was wondering if a new one would help
>> you. I know it would be a big operation for you, but If it could help
>> you....well I was just wondering...I do know that its one part of me
>> thats working okay for now, and I have 2. Maybe somehow I could help
>> you. I've just been meaning to ask you, and If I'm not a match then
>> maybe we could find you one...Anyway girl I think of you often and pray
>> for you alot. I hope you will find a pain free day soon, keep in touch
>> Karla, you are an inspiration to others,
>> God Bless You,
>> your friend,
>> Tami
>>
>> At Sat, 24 Aug 2002, Karla wrote:
>> >
>> >I just wanted to take the opportunity to write and let everyone know just
>what's been happening in my life. It is very hard for me to sit here
>through the pain and write this...both physically and emotionally...so I
>will try to make this brief.
>> >
>> >As you all know I suffered another round of renal failure back a couple
>of months. My new urologist discovered that I had a blockage of my ureters
>to my kidneys...not just one ureter but both of them...my left was much more
>severe than my right. In the middle of July when I once again became
>extremely ill and was hospitalized locally my urologist came in and realized
>just how ill I was and had me transferred to a hospital better able to deal
>with me in a larger city nearby. It was there that they placed a
>nephrostomy tube through my back into my right kidney. This allowed my
>right kidney to drain much better and aided the left kidney somewhat...the
>left kidney had to backflow into the right kidney via the ureters (I guess)
>in order to drain. It was very apparent when they compared the drainage of
>my urostomy (which was the flow from my left and right kidney) to the
>drainage of the nephrostomy in the right kidney, that the left kidney was
>not functioning properly due to!
>> this blockage. I had to undergo three weeks of twice a day iv treatments
>with vancomycin. After a couple of hospitalizations for more infections, I
>underwent a procedure where they dilated the right ureter with a balloon and
>helped free the flow from that kidney. They could not correct the blockage
>to the left kidney. It was an extremely painful experience, but it also
>aided the flow of all of the infected urine built up in the left kidney to
>the right kidney and within 12 hours of the procedure I was back in the
>hospital with a severe case of urosepsis. It was decided by the urologist
>at this time to place a stent into my left ureter at the point of the
>blockage. This would allow for better flow, if the procedure worked, from
>the left kidney. I was discharged today....knowing that this procedure was
>unsuccessful and that there really isn't anything more that they can do.
>They will try to maintain the nephrostomy tube and the stent as when the
>tube is shut off my pa!
>> in becomes totally unb
>> >earable and my abdomen bloats to the point of looking nine-months
>pregnant within about 10 minutes. They did mention that they might consider
>another dilation in a few months but given the problems I encountered I
>don't think it is something that I am willing to undergo again.
>> >
>> >God has seen fit to bless me with 46 years on this earth. He has given
>me a daughter, two granddaughters, my angelbaby grandson and now another
>grandchild soon to grace this earth. It is these blessings that keep me
>here...keep me fighting...but in realizing that it has taken my having to
>learn to say NO MORE to those doctors who so readily want to cut on
>me....and to say a silent prayer of thanks for those who said No. As I look
>forward to the birth of a new grandchild (by the way....congrats
>Raven!....nothing better than grandkids!), my feelings are quite mixed.
>There is a large amount of fear....not just in that this baby too might die,
>but fear in that our medical society doesn't seem to care. They don't seem
>to care how much so many people are suffering. They don't seem to look
>beyond their noses for the real answers. I ask that each and everyone of
>you say a prayer each day....that asks God to awaken the eyes of our doctors
>so that our children and grandchildre!
>> n might avoid this pain and suffering we endure.
>> >
>> >I don't know when I will be able to write again....but know that I try to
>keep up with each and everyone of you...even if you don't hear from me you
>are all in my heart!
>> >
>> >God's blessings to all!
>> >Karla
>> >
>> >Somewhere up in the stars.................
>> >My angel and me!
>> >
>> >http://www.geocities.com/karlasfamily2001
>> >http://www.geocities.com/princessd82000/BraydensHaven
>>


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