Re: MY LETTER TO THE EDITOR WILL BE PUBLISHED!!

From: Lynn Creacy (anonymous@medispecialty.com)
Fri Sep 20 14:07:07 2002


At Thu, 19 Sep 2002, Shawna French wrote: >Shawna,

That was great.

Lynn

>Fellow ard friends, I sat down this a.m. and composed a letter in which
>I like many of you have hopes of helping others be aware of our fight
>and educational awareness. Our town consists of approxamately 8,500
>people, our local editor red my letter and agreed to publish it! He said
>it was well written and informative. I feel if i touch only a few lives
>my efforts will be well worth it. Here is my letter:
> Dear Editor;
>Did you ever have a medical problem, the Drs. did every test they could
>and found nothing? It seems to be such a controversial issue among Drs.
>that if they cannot see, feel, and touch pain it does not exsist.
>Many drs.believe in listening to the patients, as we know our bodies
>well, others excuse us with anything they can as we are frustrating
>cases to them, or it is all in our minds.
>Sept. 23-29 is Invisible Cronic Illness Awareness Week,I encourage our
>communities to educate themselves about an illness called ARd (Adhesion
>Related disease).
>If you encounter surgery in your life, adhesions form, they are rubber
>band like scar tissue and in most cases it is minimal. In others the
>adhesions grow at such an alarming rate and attach to organs,
>intestines, in which cause a variety of medical problems including
>phenominal amounts of pain.
>Drs. will often perform a laporoscopy surgery when tests come back neg
>to find adhesions are bound tightly everywhere. They cut them out, put
>a barrier in to help block more growth. If the barrier does not work,
>you are then suseptible to regrowth and it will get worse each and every
>time. i know personally about the affects of ARD as I live with severe
>adhesions every day.
>It is a debilitating illness and I have not been well enough to work for
>6 years plus have had continual surgeries for this illness.
>I emplore to each and everyone in our community to educate yourself on
>ARD, as it is a recognized illness in only 2 states, New York and
>Wisc.There are 2 web sites for more info International Adhesion Society
>and bombobeach.com, ther you will find my story among so many others
>like me.
>One day you could have a family member ( or you do right now) with ARD
>and not even know it unless you educate yourself. This disease needs
>awareness and support so we can bring it to attention of our Drs. as
>well as congress. Please support our fight by contacting david Wiseman
>of the IAS so we cannot only be treated better medically but also with
>our dignity still in tact.
>There are so many people in our world that suffer this silent illness
>and only we as communities can make a difference. Sincerely, Shawna
>French

--
A new friend

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