Re: KAREN, HOPE YOUR POSTING, WE NEED YOU SWEETIE
From: cindy shruhan (cindyandbobby@webtv.net)
Sun Nov 3 07:36:37 2002
At Sat, 2 Nov 2002, kann wrote:
>
>Hi Mandy,
>Melissa had laproscopic surgery Jan. 11, 2002 after being ill for 13 years. It was she and I that decided
>she had been misdiagnosed and we decided maybe it was endometriosis. What the doc found when he
>went in was her whole pelvis full of adhesions. Everything was fused together. It was a horrible looking
>mess. She had felt so many times like her ovaries were going to burst. This sure explained why. However,
>after this surgery we had a disagreement with the doctor about beginning Lupron shots. She did take one
>and the side effects (for her) were awful. We found Dr. Cook on the internet and sent her surgery video to
>him. He called back and said the endo had not been dealt with and was very visible inside her body. He believes
>the only remedy for pain is complete excision of all endo. So, we flew out to CA. and she had another lap surgery
>Sept. 26th. I also have a copy of that surgery video. She had more adhesions, also. He did laser all the endo and cut out
>endo that had "bored" into her sides. Those places looked like holes in her sides. She had an adhesion from the rectum
>to the bowel and this was causing some of her constipation problem. He cut that away. I think Melissa has one of the worse
>cases of endo and adhesions, however, no doc yet has recommended a hyst. She had both tubes almost closed off,
>they were fused to her pelvic wall. Both doc's agree that one is destroyed and one is partially functioning. Her ovaries
>had bloody looking sores on them and he lasered those. He did a uterine suspension, as she felt like "something is
>falling out". Just lots of things were accomplished, now we are anxious to see the results. I don't know how old you
>are or who you doc is, but be informed, careful, not quick to make decisions, etc. Lots of doc's out there (sorry) are just
>so unconcerned. If they weren't, Melissa would have had help years and years ago, cause I have taken her to tons of doc's.
>They kept telling me she had Crohn's and she needed to "accept her illness". No one ever said "maybe we should go inside
>(lap) and see what is going on". And, I had no idea about a lap procedure until I came across the endo web site. You
>have to be your own doc---they are just a tool once YOU decide what is wrong and what to do.
>Good luck. Let me know if you need further help. Hope this has helped you some.
>Karen
>
>>> ----- Original Message -----
> From: MndyWrd@aol.com
> To: Multiple recipients of list ADHESIONS
> Sent: Saturday, November 02, 2002 8:26 AM
> Subject: Re: KAREN, HOPE YOUR POSTING, WE NEED YOU SWEETIE
>
> I have just found out about this website, what surgery did Melissa go through. It is just I have been been diagnosied with endemetriosis and the consultant says that I would have to have a full hysteretomy, ovaries etc.
> I am curious as to what I have in front of me. Any info would be helpful
>
> MANDY WARD
DEAREST MANY, PLEASE SEE IF YOU CAN GET A SECOND OPION BEFORE THIS
RADICAL SURGERY, IF YOU HAVE DONE THIS, AND YOUR STILL NOT SURE,
WAIT..AGAIN, THESE UNEEDED SURGERYIES ARE THE CAUSE OF ADHESION, AND
OTHER PROBLEMS..JUST MY PERSONAL FEELINGS SWEETIE, AFTER 19 YEARS OF
THIS, AND HAVING A COMPLETE HYSTERETOMY AT 32 YEARS OLD, AND YES MY
FRIEND I GOT MORE THAN 2 OPINIONS, DONT TAKE SURGERY AS A CURE,AS
SOMETIMES THIS IS NOT THE CASE...I JUST WISH YOU WELL, AND PAIN FREE MY
FRIEND..GOD BLESS..A NEW FRIEND CINDY SHRUHAN..EMAIL ME
ANYTIME................. cindyandbobby@Wwebtv.net...
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I'M VISUALLY IMPAIRED, I NEED THE CAP'S IN ORDER TO TYPE, NOT TO OFFEND ANYONE..THANKS FOR UNDERSTANDING...