And thank goodness I'm not in Florida LOL I live in California. I'm just at the first stages of this, still waiting on my medical release forms to get to me so I can fill them out and send them back. But I will never give up, especially since I have made the decision, NO MORE SURGERIES for me. I will wait until the Spraygel gets here, I believe its my best chance.
I will continue to post here about my progress with them. Hopefully it will be a painless one, and maybe it can help someone in California or elsewhere not to be too scared to apply.
Hugggz Lori
>From: dam_iame@bellsouth.net
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Be Prepared For SSI & SSD Adhesion Complications!
>Date: Sun, 3 Nov 2002 11:27:43 -0600
>
>When filing for SSI or SSD, keep in mind that each state is different.
>Most states will and usually do work with you regarding Adhesions. But
>if you live in Florida, you must keep in mind, this is one of the most
>hardest states to get ANY kind of Social Security! Due to the large
>number of Senior's that come to retire in this state, Florida has one of
>the highest Social Security rates, therefore making it harder to receive
>it.
>In the state of Florida, if you are under the age of 50 and not have a
>life threatening illness, chances are you will not get SSI or SSD on the
>first or even the second try, regardless of whether or not they have
>told you that you "qualify"!! You can "qualify for a car, but not
>necessarily get it!!!! It is really important for your own knowledge to
>find out what the success rate of "approval" is for "Adhesions" are in
>your state.
>Since I do live in Florida and have been going through the "process" for
>over 3 years now.
>My case has gotten to the point that I have had to hire a lawyer since I
>have been denied 3 times now. Also, since the Social Security people
>here { Florida }, when researching my case history, never EVER once
>requested information regarding ANY of my 16 surgeries for Adhesions!!
>Another good example of how hard this state is, I have a friend, who at
>the age of 13 was shot temple to temple by another 13 year old boy.
>Although my friend survived, after months in a comma and lots of
>surgeries and even being blind in one eye, since the bullet severed his
>optical nerve, he too was denied for disability twice!!!!! It took a
>lawyer for him to even get SSI & SSD!!! My friend is now 26 years old
>and received his full disability when he turned 16!!
>Just keep in mind here, each state is different, so it is always best to
>stay in touch with your Social Security case worker. Make sure they get
>ALL records and testimonials from your Doctor's { which they did NOT do
>here in my case or in my friends case either}!!
>This is your life and your well being, it is very important to make sure
>that they ARE doing their job!! I wish you the very best of luck in your
>case. Do not ever give up hope even if your denied,,, just "RE-OPEN"
>the same case not a new one,,, and keep your chin up!!! The process can
>be at times, grueling and yes even frustrating, but you must continue to
>remain strong through out!! You will eventually win!!!
>Best of luck to you!
>Denise
>
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