Re: To Lynn Re: Where do I go from here?

From: anonymous (anonymous@medispecialty.com)
Tue Nov 12 09:44:23 2002


Your doctor does NOT know anything about SprayGel!! What makes him an authority on SprayGel??

"I can not have SprayGel placed as my doctor told me due I might get an infection..."

At Tue, 12 Nov 2002, Eileen Rivera wrote: >
>Dear Lynn,
>
>I'm sorry you're also in this condition. To be honest with you I
>haven't gone to see a Pain Management doctor so far because I'm not
>working since my last surgery in February and I'm not receving any
>income, only goverment food coupons. I'm in a very bad financial
>situation. The little money I receive sometimes by friends and
>relatives I use it to see the surgeon thatdid my last surgery. I do
>have a medical plan that my job is paying for one more year which I
>thank God for that. Please give me more information on Germany, UK and
>Australia...is there any hope there? I can not have spary gel placed as
>my doctor told me due I might get an infection but the doctor did placed
>an adhesion barrier (Seprafilm) on my intestines,feel it did not work
>because I'm back like before this lasr surgery. This is so frustating!
>I'm using Ultram and Percocet for the pain. Lynn, I feel doctors really
>don't know how bad this really is, how bad is the pain. I will be also
>praying for you. God bless. Eileen
>
>At Mon, 11 Nov 2002, Lynn Creacy wrote:
>>
>>At Mon, 11 Nov 2002, Eileen wrote:
>>>Eileen,
>>Have you gone to see a pain management doctor yet? I am so sorry to hear
>>that you have gone through so many surgeries. No one should have to go
>>through all of this pain and also have to deal with the most insensitive
>>doctors in the world. Is there anyway you can go to UK,Germany or
>>Australia for your surgery and spraygel? That is what I am planning. I
>>am seeing a pain clinic and when I can I an going to Germany. My
>>prayers are with you.
>>
>>Lynn
>>
>>>Hello and God bless all adhesions sufferers and family.
>>>Please advise, need support to carry on with this misery. I have posted
>>>my story in the adhesion quilt over a year ago, also posted a message a
>>>few weeks ago, had no answer. Again, I have terrible pain inside my
>>>belly button and abdominal area. I'm nauseus, can't eat solid foods,
>>>hardly can't go to the bathroom etc. This is not the first time this
>>>happens. I have had ten surgeries and the last one was last February
>>>2002. I have been having surgeries since 1991, first caused by severe
>>>endometriosis.
>>>
>>>This last surgeon placed Seprafilm over my intestines and he
>>>reconstructed my belly button (had also an hernia inside the belly
>>>button which I think that was the caused of the discharging liquid and
>>>blood and bad smell from the belly button). He also told me I"m "full"
>>>with adhesions in the abdominal area. He only removed the adhesions
>>>that were estrangling the intestines and "belly button". Every ten to
>>>twelve months after surgery adhesions estrangles my intestines and
>>>another organ all over again. It' a vicios cycle. I can't move
>>>normally, strech, sleep normally because of the terrible pain it causes.
>>>I'm all "tied" up inside.
>>>
>>>Doctors admits me into the hospital and places tubes inside my nose down
>>>to my stomach.... bowel obstruction. This last surgery the surgeon
>>>told me "you cannot have no more surgeries" !!! Now, here I am again
>>>with the same problem, where do I go from here? I made an appointment
>>>for tomorrow to see this last surgeon once again. He also told me he
>>>did not place a "spray gel" because my abdominal area is so delicate he
>>>thinks I could have gotten an infection. I think when he see me he's
>>>going to run away. Every surgeon, doctor I see tells me the same thing.
>>>No remedy! Every time I have surgery it's a life or death situation due
>>>to that my organs are estrangled and the doctors tells me "you have to
>>>have surgery or you'll die, you can not hold much longer.
>>>
>>>I'm not working since last January 2002, I was turn down from Social
>>>Security Benefits and hired a lawyer this time. Love to all. Eileen
>>>(San Juan, Puerto Rico)
>>
>>--
>>A new friend
>>


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