Re: Help
From: kann (stew@cowtown.net)
Fri Nov 15 10:38:17 2002
Karla,
Yes, I did get your picture and story from Bombobeach....per your permission
just printed off great--photo looks
great printed on photo quality paper.....definitely--send me anything more
that you would
like!
Karen
-------Original Message-------
From: adhesions@adhesions.org
Date: Thursday, November 14, 2002 11:22:59 PM
To: Multiple recipients of list ADHESIONS
Subject: Re: Help
Karen,
I don't know if you understood my message to you about my participating in
the Oprah project. Do you or does someone else know how to use my picture
that is on Jo's website without removing it from there? I have become
pretty computer illiterate lately....I don't know if I am losing it or what.
.I just don't have that knowledge like I used to. In addition to that
picture I can also point you in the direction of another picture of me....
one that says it like it is, but doesn't have my face. Let me know if you
are interested in where to find it. Other than that, I don' t have pictures
of myself...I don't do them. Let me know. I think I can manage to provide
my story.
Thanks for the efforts.
Karla
kann <stew@cowtown.net> wrote:
Nancy,
My daughter can't stand anything but loose clothes. I don't think she is
quite as
sensitive as you are, however, anything snug makes her uncomfortable, and
she does
have times that the baggiest are not baggy enough. I know what you mean when
you say you feel the doctors are through with you. There are some like that
out there. I think some get frustrated,
others just don't know how to continue dealing with the complaints when they
feel they have
done what they know to do. Also, most GP's think you're (we're) nuts ,
WITHOUT mentioning
Germany! IBS can be anything from cramps, diarrhea to constipation. I think
IBS basically stands for " I Be Sick"........it should be "IBSDDKWIISTCIIBS"
Translation: "I be sick, doctors don't know what it is, so they call it IBS"
When you feel your doc is through with you, be through with him (her). Find
someone that doesn't mark you up as "psycho".
Love,
Karen
PS Please join us the Oprah Project!!!
--
-------Original Message-------
From: adhesions@adhesions.org
Date: Thursday, November 14, 2002 06:32:01 AM
To: Multiple recipients of list ADHESIONS
Subject: Lurker here - First Post & Need Input on Belly Pain
Hi all, I've been scaning this board from time to time since I had
complications from a hyst in July 02. I had a cuff cellulitis that was
not treated until 6 weeks post op. I kept thinking this pain was
related to the infection and when it is finally cleared up, that this
pain would be gone - no such luck. I had an adhesiolysis in October 02.
Op report read 'large area of omental adhesions on the midline...taken
down sharply... vessels controlled with cautery....' Surgeon said they
had my bowels kinked. I thought OK, the adhesions are gone, this pain
will be gone. I had been having some very suspicious pain, and now the
pain is almost back to the same level as it was before the lysis. Before
the lysis, I was also having to keep my legs up on pillows 'because I
couldn't stand for the the back of my legs to touch anything. I don't
have to do that anymore. I am still able to eat solid foods since the
lysis for which I am v! ery thankful. I have not gained much weight back,--
but I feel stronger. It just seems the pain is creeping back.
I have a real tough time with clothes that do not hurt my belly. Simply
bigger clothes do not provide enough relief. The most comfortable ones
I have found were 4 sizes too big, and I still had to take the elastic
out of the front of them. They have a drawstring so I tie them to my
bra. Works out pretty good. Anything that touches the belly causes
pain for hours later. Is this common?
I'm considering going to Germany - I mentioned this to my GP. He
absolutely thinks I'm nuts. Thinks I've been on the 'net too much and
my anxiety is causing the pain. I thought more like... the pain is
causing the anxiety! I guess he thinks I like wearing maternity clothes.
He is going to start treating me for IBS. Doesn't IBS include bowel
cramps and diarrhea? I have none of that. To sum it up: I think my Drs
are through with me.
I still have a recessed spot on my belly where the adhesions were based.
Feels like the skin is real thin over that spot.... kinda like there's
nothing underneath the thin layer of skin. Is it common for clothes
that touch your belly to cause this much pain? If this is not adhesions,
any idea what else it could be?
Thanks in Advance,
Nancy
.
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