Firstly I want to say that your idea is wonderful, refreshing and a very positive step! When I started the "awareness campaign" my goal was to stimulate other ARD sufferers to think "outside the box" to find ways to get some attention for our cause. Your idea certainly falls into that category!
Karen, I WILL send you my story and photo, I would be honoured to be included in your book.
As to my story here on the IAS Quilt, I will clarify things with David Wiseman, but in the mean time I will be removing my story until clarification has been given.
Sincerely, Jo Eslick
-- Joanne Eslick Founder Australian Adhesions Support Group http://www.bombobeach.com NSW Australian Co-ordinator of International Adhesions Society http://www.adhesions.org
-- I am not a medical person, and all my messages are based on personal experience. I am a fellow adhesions sufferer reaching out to help others.