Re: An update on whats happening- I have Primary Sclerosing Cholangitis!
From: cindy shruhan (cindyandbobby@webtv.net)
Sat Nov 23 11:54:57 2002
At Sat, 23 Nov 2002, Annie Hawksley wrote:
>
>Hello to all at IAS!
>
>It has been quite some time since I posted here on the IAS board.
>Thankyou to all who responded to my call for assistance in my last post
>but have found it impossible to keep up & try posting due to the nature
>of my complicated life! I appreciated all your messages of support &
>assistance.
>
>Since posting I have undergone numerous tests to determine the cause of
>my enlarged common bile duct.I had ultra sound, CT scan, MRI, & many,
>many expensive blood tests.
>
>The end result is that I have a diease called Primary sclerosing
>cholangitis, which basically is the area both inside & outside the bile
>ducts become enlarged due to infection & scar tissue forms - its is
>usually related to inflammatory bowel diease, crohon's diease, or
>ulcerative colitis & rarely but possible osteoporis ( which I have
>also!)It also is related to the auto immune system. The progression of
>this diease effects the liver to the stage where liver failure is a
>significant possibility.There is no treatment for PSC, except a
>medication that may slow the the process. For more info go to
>http://www.liver.org & it will give you all the necessary info.
>
>Not only have I suffered from adhesions from the age of 14 years - Iam
>now 52- I now have to come to terms with this horrible diease. I am
>under a good doctor here in Western Australia, a Professor who heads the
>liver transplnt team here in WA!
>
>How do I feel? Simply put - numb & devasted.
>
>So, my dear friends out there, please be patient. I am unable to answer
>everyones emails personally as I spend a lot of time travelling to
>doctors, some 2 hours drive away & we all know so well how travelling
>affects adhesions even when just sitting in the car just getting from
>"point A to point B!
>
>I also, like so many adhesion sufferers am unable to lead a normal life
>& have to spend many hours each day trying to get relief from the pain I
>suffer so badly.
>
>The next step in this pathway is a liver biospy, which will be done in
>the next couple of weeks.It will determine the extent of the liver
>damage I alredy have! They will then decide whether I am a candiate for
>the medication given that slows the process of the diease. They are
>unsure whether this medication does any good or not! What a great
>Christmas present, eh!
>
>I will endeavour to keep you up dated on my progress or I may ask my
>dear sweet friend Jo Eslick to let you know.
>
>Thankyou all for your past support. I do ask for your prayers over the
>next few weeks.
>
>Should you wish to contact me privately, my email address is...
>monkopen@wn.com.au
>
>Love & blessings to all & I hope everyone is able to cope with their
>pain & suffering.
>
>Annie
>
>--
>Annie H
>
MY DEAR ANNIE H, JUST A NOTE TO LET YA KNOW MY FRIEND THAT IM PRAYING
FOR YOU, THIS NEW NEW'S HAS GIVEN YOU MORE THAN ONE SHOULD HAVE TO BEAR,
KNOWING MYSELF AS I ALSO BATTLE TWO WARS, ADHESIONS, AND ULCERATIVE
COLITIS, KNOWING THAT MY PROBLEMS ARE NOTHING COMPARED TO YOURS, FOR I
KNOW SOMEONE OUT THERE, IS WAY WORSE OFF THAN I, AND YOU MY FRIEND I
WILL PRAY SO HARD FOR, KNOW THAT YOUR IN MY HEART ANNIE, AND KEEP US
POSTED ON HOW YOUR DOING, AND WERE ALL HAPPY YOUR BACK WITH US..MAY GOD
BLESS YOU, AND TAKE GOOD CARE OF YOU...YOUR FRIEND CINDY SHRUHAN
cindyandbobby@webtv.net
--
I'M VISUALLY IMPAIRED, I NEED THE CAP'S IN ORDER TO TYPE, NOT TO OFFEND ANYONE..THANKS FOR UNDERSTANDING...