Re: adhesions suck and I am fed up!!!
From: cathy:- (anonymous@medispecialty.com)
Tue Dec 17 20:28:16 2002
Boy, we hear ya, sister! The first thing that I would do is go back to
last week's postings and look for two from Helen Dynda. She put in
links to a couple of sites that have all of the various alternatives to
hysterectomies for the things that hysterectomies are usually used for.
I would focus very hard on making sure that every other possible
treatment is exhausted before consenting to a hysterectomy. Having one
is going to make your adhesions worse. The ONLY hope you have of that
not happening (and even this is not a sure thing) is to delay the
surgery until spray gel is approved in the US (expected in spring-summer
2003) and you can get an expert surgeon to do the surgery and lay down
the spray gel.
Every time you have a thought something like, "I can't imagine anything
worse than spending the rest of my life using narcotics to function,"
tell yourself that you are suffering from a lack of imagination! There
are surely worse things, as any one of dozens of people here can tell
you. Because they don't have to IMAGINE worse things, they LIVE worse
things. Much worse things.
At Tue, 17 Dec 2002, Tonya Fleming wrote:
>
>I am new to this forum. Until yesterday, I thought I was the only one
>that suffered from adhesions. I live in Idaho and the doctors here are
>"small time" so they seem to not know anything about them. I have seen
>many doctors and they all seem to think that the pain is either in my
>head or I'm "drug-seeking". I'm tired of not being taken serious and
>not being diagnosed correctly. I've finally moved to the biggest city
>in Idaho and finally I'm gaining some ground on them believing me and
>running tests. But now I've been referred to a chronic pain center and
>told that there is nothing that can be done for me. I'm scared because
>I need a partial hysterectomy and am scared to death that the surgery
>will screw me up even more. I've already had 4 surgeries to remove the
>adhesions to my liver, bowels and ovaries. Now, one more surgery could
>put me even in more chronic pain. Has anyone out there got any
>suggestions on this? I am desperate to find help. I appreciate this
>site so much because until yesterday, I suffered in chronic pain alone.
>I don't know another sole in this world that has my problems. Thank God
>for you all.
>
>Merry Christmas to all
>Tonya
>
>--
>Tonya Fleming
>
--
cathy :-)
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