I have read many of your stories and from other people and I tell myself that I have so much to be thankful for. Some of the women on this site are in way more pain than I, and have suffered many years longer than my 4 years. I honor you women out there that are sharing with us your life experiences because without you all, I would still be thinking that I was the only one. We must educate others and bring these experiences to our doctors and tell them that this is real and not a figment of our imagination. The doctors need to see us unite and meke a stand for our rights to be treated with dignity and respect and not told that it's "just in our heads". If we added up all the money that was spend in us just going from doctor to doctor to find a diagnosis ....that would be in the millions, I'm sure, and that money should have been spent on research in every country. We need to fight to be heard and possibly a cure found.
Thank you for all your advise and moral support. Some days I just feel like giving up and I'm only 36. I am engaged to be married in June and I found a man that loves my body just the way it is....adhesions and all. He understands my pain and suffering and is so supportive also. He is so glad that I've found this site and is grateful for all of you too.
I feel very uplifted today. Today has been almost a pain-free day and I feel very thankful.
May your days be pain-free and your holidays blessed with lots of love and happiness.
Tonya
>From: anonymous@medispecialty.com (cathy:-)
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Re: adhesions suck and I am fed up!!!
>Date: Tue, 17 Dec 2002 21:30:08 -0600
>
>Boy, we hear ya, sister! The first thing that I would do is go back to
>last week's postings and look for two from Helen Dynda. She put in
>links to a couple of sites that have all of the various alternatives to
>hysterectomies for the things that hysterectomies are usually used for.
>
>I would focus very hard on making sure that every other possible
>treatment is exhausted before consenting to a hysterectomy. Having one
>is going to make your adhesions worse. The ONLY hope you have of that
>not happening (and even this is not a sure thing) is to delay the
>surgery until spray gel is approved in the US (expected in spring-summer
>2003) and you can get an expert surgeon to do the surgery and lay down
>the spray gel.
>
>Every time you have a thought something like, "I can't imagine anything
>worse than spending the rest of my life using narcotics to function,"
>tell yourself that you are suffering from a lack of imagination! There
>are surely worse things, as any one of dozens of people here can tell
>you. Because they don't have to IMAGINE worse things, they LIVE worse
>things. Much worse things.
>
>At Tue, 17 Dec 2002, Tonya Fleming wrote:
> >
> >I am new to this forum. Until yesterday, I thought I was the only one
> >that suffered from adhesions. I live in Idaho and the doctors here are
> >"small time" so they seem to not know anything about them. I have seen
> >many doctors and they all seem to think that the pain is either in my
> >head or I'm "drug-seeking". I'm tired of not being taken serious and
> >not being diagnosed correctly. I've finally moved to the biggest city
> >in Idaho and finally I'm gaining some ground on them believing me and
> >running tests. But now I've been referred to a chronic pain center and
> >told that there is nothing that can be done for me. I'm scared because
> >I need a partial hysterectomy and am scared to death that the surgery
> >will screw me up even more. I've already had 4 surgeries to remove the
> >adhesions to my liver, bowels and ovaries. Now, one more surgery could
> >put me even in more chronic pain. Has anyone out there got any
> >suggestions on this? I am desperate to find help. I appreciate this
> >site so much because until yesterday, I suffered in chronic pain alone.
> >I don't know another sole in this world that has my problems. Thank God
> >for you all.
> >
> >Merry Christmas to all
> >Tonya
> >
> >--
> >Tonya Fleming
> >
>
>--
>cathy :-)
>
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