Re: new info
From: lsmith03@msn.com
Fri Dec 20 12:50:39 2002
At Sat, 30 Nov 2002, Lynn Creacy wrote:
>
>At Fri, 29 Nov 2002, linda garcia wrote:
>>Dear Linda,
>
>I was having terrible pelvic and abdominal pain. I had a tubal
>pregnancy and my tube had burst. The dr said that this was what caused
>me problem. Then 3 months later, I was still having the pain and is was
>also in my absominal area now. I decided to go ahead with the hyst at
>the age of 40 because of the pelvic pain. He took out all of my female
>organs including the uterus. As of today (about 7 yrs later) I am
>fighting the adhesions which are everywhere in the pelvic and abdominal
>areas. There is no way that a dr can say that surgery will cure you.
>Especially with having a hyst. Please read more info regarding ARD
>before you decide anything.
>
>Lynn
>
>>Hey everyone, hope you are all doing well and had a wonderful Thanksgiving. I have a couples question if any one can help me out.
>>
>>First I would like to let you know that I had sent the "letter" to the Governer of Wyoming and the Senators. The Gov. forwarded it to the department of health. And he says that there are no programs for our issues right now. He did offer to help find a doctor that specializes in ARD. YIPPEEEE!!!!!!!!!!! May be now I can get some needed relief. He also said that for the Social Security part, the changes need to be made at the Federal level. I did send this to the Senators and Reps. so I will keep you posted.
>>
>>1) Got a phone call from Dr. Toaff, saying that a hysterectomy would not solve my problem. He also said that the adhesions could be fixed using microsurgery, with a skilled surgeon. What do you guys think?
>>
>>2) I am having a hard time convincing my husband and my family that hysterectomy is the wrong answer. They believe it will cure me since my uterus is stuck to the abdomianl wall and omentum. any suggestion to help me deal with them? I know they mean well but they just don't know what I go through daily. I hide it as much as I can when they are around.
>>
>>Any suggestions and all replys are welcomed.
>>
>>Love,
>>
>>--
>>Linda Garcia
Linda,
>>Be careful! Adhesions are your body's natural defense. Every time you have surgery you create more adhesions. Each time the adhesions find more to adhere to. I have pictures from my surgery last December and it looks like a spider was let loose and tried to fuse all of my internal organs together. I have very few left because of my surgeries though. The Hyst. started it all in 93, then a bowel resection and appendectomy in 97, then bowel obstruction and gall bladder removal in 01, and another lysis of adhesions in 02.
Surgery is surgery. The surgeon that did my work in 97 was skilled and
arrogant. He told me I wouldn't have the problem again so when the
symptoms came back I believed him when he said it wasn't the same thing.
Fortunately now I have a surgeon who is honest and not full of himself.
He explained to me that there is no way to guarantee that the adhesions
won't come back. Your body will scar that is what it is supposed to do.
For some of us it just doesn't seem to know when to stop. Question: Did
you need a hysterectomy for endometriosis? I am wondering if the clues
were there all along but we didn't know what to look for. For example,
I needed the hyst because my cycles were so heavy. My body would create
excessive amounts of endometrial tissue just like it creates excessive
amounts of scar tissue now.
>
>--
>A new friend
>