hi my daughter is 17 years of age she has been suffering terrible pain
for the past seven years she is a past hirschsprunges child she was fine
until the age of ten, this is when the vomiting started and the bowel
probs got worse she has been under a painmanagement team in yorkhill
hosp in glasgow. but we are getting no where she can hardly eat
anything at all because of pain she struggles to get out and about and
bowel movement are painfull. she also had probs with her overies as
well caused by the adhesions . we personaly think that her probs just
now are caused also by more of them we are waiting for the results of
her mri but the doctors are hesitent about doing anything. she has no
quality of life at present and is stuck in ded most of the time with the
pain. she is very weak i am trying to find anyone that can give us any
advice at all or anyone in this situation. my daughters name is
kimberley rodger and we live in maybole ayrshire
> >At Thu, 15 Jul 1999, smithy@maine.rr.com wrote: >>Dear Meagan > >My name is Letitia I was also born with HD I know How you feel and I >know what your going through. I also Have a disease called werners >syndrome. since i have both diseases, one disesa makes the other worse. >I have had surgeries since I was 2 months old and now I am 22 yrs old. I >know you can hang in their i do everyday >>Iam not real good at this internet thing but I have had so many problems >>with adhesions and scar tissue I looked you up and decided to write. Iam >>23 as of July 4th and when i was born I had Hirschbrungs disease. I had >>8 major surgeries before I was 3. Then I was fine for many years after >>that. In May of 1998 I started throwing up almost after every meal. I >>had a group of Doctors that could not do anything but stand around. >>December of 1998 I found the three doctors that were sure to change my >>life. They did. In febuary of 1999 they performed another major >>surgery. Removing a lot of scar tissue and adhesions from all my old >>surgeries. They also found out I have Polycistic ovaries. so they >>removed 2 softball size cysts from me during surgery finding out later >>it was my fillopian tubes. They said surgery as a baby probably damaged >>them pretty bad. They then cleaned my liver free of scar tissue and >>adhesions. I guess that is why I had that greenish color for almost a >>year. Well I guess why I am writing is because in the last month I >>started throwing up again and I have this bee sting pain near my >>incision. I was wondering if anyone had any feed back at all on my >>condition or my situation. Thanks for your time I appriciate it. Megan >>Kittredge.