Re: Adhesions after usng Interceed

From: Dawn (dawn@naisp.net)
Tue Dec 31 04:15:46 2002


Dear Denise, Welcome to the site. Boy, you are in the right place. Many here, myself included have had the same troubles as you. First the bad news, there is really no fool proof adhesion barrier on the market today. My surgeon used seprafilm during my hyst. and well, here we are. The good news is by being here you can help empower yourself by educating yourself about your conditions and hopefully work with your docs to help you be comfortable. Pour throught this site and read all you can. Punch in your symptoms and conditions to the message archives and see what other have been thru. I think of medicine today as if us patients are a large herd of cattle in a pen that need their hormones or whatever injected. The cowboys try to get thru the line as quickly as possible and god help that whiney cow who does not do what it is told. Ah, so I'm not great at parables but my intent was that by being aware of all that may and may not happen to you, the docs can't possibly keep up with what each and every thing that goes on in the rapidly changing world of medicine. It is up to you to educate yourself about all the latest on your conditions. In this site you will find out how to reasearch, how to work WITH your docs and most important of all, that you are not suffering alone. We are all here for you. To ask any question you want or just to rant and rave. We understand what is happening to you and will always be here for you. The endo is a devil and the lesions can be deep and fibrotic. Not all docs know what to look for when removing this deep type of endo and I am sorry one so young has been put thru a hyst. Please consider putting your story on the quilt. The IAS is working on many levels to try to make things better for us all. Your story would surly help. My email is at the top of this post. Feel free anytime or just post on the board. Someone will always try their best to answer your questions or at least point you in the right direction. Welcome sister. You are not alone. ( don't mean to sound "Cult like") Love, DawnAt Tue, 31 Dec 2002, Denise wrote: >
>First off, I am a 27 Yr old WF who has endometriosis and pelvic adhesion
>disease. I had a complete hysterectomy with removal of ovaries and
>cervix. My doc in July 2001 used Interceed after the surgery to try and
>help the production of adhesions/scar tissue. I just flew to GA in the
>beginning of Dec to have surgery with an endo specialist. I forgot to
>mention that during the hyst, it was supposed to take 2 hours and ended
>up being a 5 and a half hour surgery because I had so many adhesions. My
>intestines were attached to my abdominal cavity and things were stuck to
>my bladder, etc. So, this laparoscopy I had Dec 11, showed no endo,
>yeah, but I had alot of adhesions again, the majority of my intestines
>in my lower adomen were attached to the my abdominal cavity again.
>My question is if the Interceed did not work the first time, and my new
>doc after this surgery used it, what are the chances in another year I
>will be in excruciating, debillitating pain again? I know that with each
>surgery there is the chance of further adhesions and scar tissue, but,
>it has been proven that the adhesions cause severe pain for me that I
>cannot deal with.
>
>Are there woman out there that who every year or so go in for a
>laparascopy to remove the adhesions so they are not in pain and can live
>a normal life?
>Any advice ia apprectiated and welcomed. Thank you in advance.
>Denise

--
I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.

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