Where in the world do you find the time to write to us? If you are such an up-to-date doctor like you've said, then shouldn't you be studying more to help us rather than banish our hopes and our KNOWLEDGE? Since I've been a part of this forum, I've gained more knowledge in the past month than I've found out from all of my surgeons combined about this subject of adhesions. I have recently moved to Boise, Idaho, where there are a lot of "small-time" doctors, but we also have some of the most renoun doctors here (came here to have a life-style change) but non-the-less, have "big-time" knowledge is what I'm finding out. I have taken many of the things that I've learned from these women on here and have showed my doctors and I'm finding out that they DO know what they are talking about in most cases. You know why????? It's because WE LIVE IT EVERY SINGE FRICKEN DAY!!!!!! It is our job to know because too many quacks like yourself out there have mis-diagnosed us for years and have told us that it's just in our head, or that we are depressed is all, or "women are more likely to complain about pain because of our gender". I am fed up with your contrary responces to us all. If you are so sure that we are being fed a line of bull from Dr. K in Germany, then reserch it out and show us the proof. As for us here in this forum, and I think I speak for all of us, if even ONE of us has a positive outcome from his procedures, then it's worth every dime spent. I know that I would give anything to have one day free of pain. I am only 36 and I suffer constantly with what my old gyno thought was "just post-baby pain"!!! My God! My kid is almost 6....he's done 4 surgeries on me and I'm covered with adhesions to the point of not being able to work any more. Before you, Dr. Moore, have even one more pessimistic thing to say to us, go do yourself a favor, find out about what you don't know before you try to shove it down our throats.
Tonya
>From: bbm1969@bellsouth.net (Dr.Moore)
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Dr. Moore Responds
>Date: Thu, 9 Jan 2003 16:08:20 -0600
>
>Some pretty harsh responses from this board. I suspected that would be
>a likely response. I have had a lot of experience with adhesions and it
>is a very frustrating problem. And I have done a lot of surgery to
>remove adhesions (in fact I did a laparoscopic lysis of adhesions
>today), with mixed results.
>
>To dispel a few incorrect statements-
>1) I am only 33, so my knowledge is not outdated. I finished residency
>in 1999.
>
>2) Never did I say "Go home and deal with it" although this may be
>better advice than that given by some of the people on this website. You
>see the problem with "I did this and now I'm better" advice (called
>anecdotal evidence in medical terms) is that it just isn't valid.
>
>A real scientific experiment involves a placebo arm, where patients are
>given similar treatment but without the "magical" cure or medicine.
>Because as all of you know some people don't form adhesions- this means
>that sometimes "nothing" works to prevent adhesions. And that's where
>barriers like Intercede (and probably this Spraygel) failed.
>
>I always tell my patients that if a treatment is not proven to work, but
>works for them (eg herbal supplements) they should do it. As long as it
>is not super expensive (eg flying to Germany and paying out of pocket
>for surgery) and isn't harmful (like surgery can be). Dr. K should
>remember the first rule of medicine, Primum non nocere- first do no
>harm. And if his treatment works, then prove it. It's quite simple to
>prove medical therapies work, I would love to start using his techniques
>tomorrow if they worked.
>
>Finally, do your own research. THE PLACE for researching medical
>literature is PUBMED. Here is the website, search for your self- the
>website gives you abstracts (short summaries of the experiments/clinical
>trials) and the original source so you can go to the library and look at
>the original articles. Here is the website:
>
>http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
>
>Oh, one last point- The "you don't know what we're going through"
>argument also doesn't work in medicine. I don't know Dr. K's story,
>but I doubt he has pelvic adhesive disease. And I assure you that to be
>a good cardiologist you don't have to have a heart attack and to be a
>good neurosurgeon you don't have to have a brain tumor.
>
>At Wed, 8 Jan 2003, Koolinsask@aol.com wrote:
> >
> >Dear Dr.Moore, yes, I would have to agree with Sally, the sad part is,
>you
> >nor any doctor out there, can relate to what pain we go through, the
>daily
> >struggles, the depression, some of us are unable to work any longer, many
>of
> >us are very young, with very young children, just beginning our
>lives!!!!!
> >Only to be stripped of a "normal life". Too many doctor's tell us to go
>home,
> >suffer, sorry there is nothing we can do! This attitude has got to stop,
>we
> >need help, and we for so long have relied on our caregiver's to educate
> >themselves, to help us......well, it hasn't happened, we have come
>together
> >here on this forum, to help one another, to give support, to FIND
>help...if
> >that means spending money, money in which, is nothing when it comes to
>one's
> >health, then so be it!!!!!! I would also advise yourself, and hundreds of
> >other's out there, to please consider, researching, and try to understand
> >what it is that each and everyone of us is going through, it's an utter
> >nitemare!!!!! Please, i am not trying in anyway shape or form, to
>discredit
> >anyone doctor out there, but rather, pleading with you , to learn more,
>and
> >instead of telling us to go home, tell us, you are trying, you are
> >researching, and that you CARE, AND UNDERSTAND!!!!! We are all human,
>just
> >like your' wife, your' daughter, son , husband, mother , father
>etc......we
> >want to live, we want to see our children grow up, we want to take care
>of
> >our children, and get through our day's , just like you do!!!!!!!!!!!
>Thank
> >you for at least dropping in, and maybe reading through some of our
>stories,
> >that is a very nice first step....please, come back, and inform us, of
>any
> >new happenings that you may find out there!!!!!!
> >
> >Cherryl
>