Re: One More Log for the Fire

From: Tonya Valpey (rainchild_35@hotmail.com)
Thu Jan 9 20:20:34 2003


Thank you, Kelly, for your response. I am currently on disability due to a brain tumor, but I have adhesions also. I know how hard it is to get on disability and not just anyone can go in and get it just because they want it. They really question and examin you thoroughly. This Dr. Moore seems to have all the answers but doesn't have a clue to what's really going on around here. I just wanted to tell you thanks for standing up to his smart alec remarks. It's almost as if he's trying to piss us off. For all we know, he could be some couch potato that's sitting at home trying to hack into our computers from getting our E-mail addresses and the information that he "seems" to know, could have been from him reading our posts. I think this guy sends out some red flags....my doctor has looked at this site and not once has he had time to post several messages ...all of length. I think that we should question his motives and be careful of him. He has pissed me off too. Yesterday was my first appointment with a pain center and it was so nice to have a doctor look into my eyes and say, "I'm going to help stop your pain", not say "can't give you narcotics because you might get addicted to them. So live with it!" I felt like a real person yesterday because the doctor addressed my pain and suffering and was willing to give me a better quality of life....even if it is with some narcotics and some non-narcotic.

I do understand the financial strain that it puts on a family when you can't work and you need the second income. My ex left me largly due to financil strain of me not being able to work. I am thrilled that you are able to resume your life. I am hoping that I can some day too. As for now, I am a single parent that is on disability and has managed to support my family. We don't starve and that's the most important thing. And I have paid into DISABILITY...I was a Deaf Interpreter for many years.

Again, I thank you for standing up to that self-professed "doc". I don't understand how he could possibly have enough time to argue his point and read so much on this and be a phyisian. Something isn't kosher with him, I feel.

Tonya

>From: "K. Murray" <mkmurray@cyberport.com>
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Re: One More Log for the Fire
>Date: Thu, 9 Jan 2003 20:59:07 -0600
>
>Okay, I wasn't going to post anything to this mess but you have made me
>angry.
>First off, I went to Germany 5 weeks ago. This was a decision that was made
>after asking a lot of questions and talking it over with my own Dr. and
>discussing it with patients that had gone.
>As far as the narcotic use, most people that are in pain do not get
>"hooked.
> I worked in Substance Abuse until I had to quit because of of my illness.
>It is not an exchanging recipes as you say. When I was going to pain
>management, I would suggest a med that was helping someone on this site to
>my pain man. doc and we would try it to see if it helped me. He was open to
>any thing that was safe and would help.
>I was on Narcotics until my surgery in Germany and now I am off and have
>not
>had any problems getting off of them.
>Another thing, I have always been a hard worker having worked in the mental
>health and substance abuse field. I had to quit to stay home because of the
>pain. I thought seriously about collecting disability as it has crunched my
>family financially. You don't know how hard that is to have to do. But now
>I
>will be ready to go back to work in a few weeks. People that actually
>decide
>to collect disability don't know where to begin so they can ask here on
>this
>site. Now is that a problem??
>Some of us have other health problems such as Cystitus that seem to go
>along
>with adhesions that is why we talk about them on this site.
>You make us sound like a bunch of drug-using, money-grabbing, lazy,
>un-educated women .
>We could be your mother, sister, daughter or wife.
>So please do not put us down like that.
>Kelly
>-------Original Message-------
>
>From: adhesions@adhesions.org
>Date: Thursday, January 09, 2003 07:44:32 PM
>To: Multiple recipients of list ADHESIONS
>Subject: One More Log for the Fire
>
>I almost hate to say this, but I feel an odd sense of responsibity to
>bring it up. Maybe because I like to stir up the pot, but maybe also
>because I really think there maybe some bad players out there. I want
>my patients who may read this message board to know there are other
>opinions.
>
>I am disturbed by the number of posts on this site that deal with
>narcotic use. Some of the posts almost have an "exchanging recipes"
>feel to them. I prescribe narcotics regularly for patients with real
>pain, but am always worried about addiction. And someone with poor
>bowel motility surely doesn't need to be on chronic narcotics.
>
>I also am disturbed by the number of posts that describe in detail how
>to get money for your adhesion pain. Sure, if you are disabled from
>your adhesions, you should be able to collect what is yours. But there
>seem to be almost as many how-to posts on getting disability as there
>are discussions on the disease. There is even one post on how to get
>disability if you have interstitial cystitis (how is this connected??).
>
>.


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