Re: All shook up!!
From: Sally Grigg (LostCst@mcn.org)
Sat Jan 11 14:06:06 2003
At Fri, 10 Jan 2003, AprilDe402@aol.com wrote:
>
>Hi Marylou,
>This shook me up a bit too, since I leave Tuesday for Germany. All in all, I
>still feel good about my decision. I have spent one year researching,
>running from doctor to doctor......considering all my options. Now I may
>not be an expert on understanding these clinical trials and pilot studies and
>what not, but I do see some very qualified surgeons very interested if not
>excited about Spraygel. I have also spoken personally with Lisa
>Graven.....and this holds weight for me. I have reconized all along that
>this may not be the answer to all of my problems but if I get some
>improvement it will be better than the way things are going now for me. I
>figure if I had cancer there are many treatment options and many opinions
>from others about what one might do, but ultimately they are not in my shoes,
> even adhesion sufferers share different experiences......some have bowel
>involement some dont....etc. So I even tho I must admit this shook me up at
>first....... I realize I can only make the decisions......based on
>knowledge.....I firmly believe this is not snake oil......and I am not
>expecting perfect results.....just the best chance of some help I can get.
>So I am at peace with my decision......(I'm glad I only can make them for
>myself) LOL....
>When I get back I plan to post to my experience.......others will decide for
>themselves......I sure have appreciated the ones who have shared thier
>knowledge and experience and let us make our own decisions. Noone on this
>board has ever pushed anything on me...............I have learned sooooooo
>much. Even doctor moore in one of her posts said the one study looks
>promising........
>Any way just had to let you know I was feeling a little shook up too, I have
>been known to get a bit shook up before surgery anyway! lol
>Your friend,
>April P.S. Do you know if the apartment has washer and dryer?
--
Dear April, Hi, its Sally. The apartments don't have washers/dryers,
but the building does. A housekeeper came in with Dr. Kruschinski's
nurse and washed our sheets, towels, and even some of my husband's
things. The do use those scented dryer "sheets" probably because
people smoke so much. I tried to make the lady understand my husband wasn't
into perfume, but the dictionary and concepts didn't help with that
one. LOL. Anyway, you can get your things cleaned and dryed. I've worked
all week and I'm so tired and sore, I need to collapse for the
weekend. It was so good to FUNCTION AGAIN. Good Luck dear, Love, Sally