Re: Help - Chronic Adhesions

From: Christine (curleyki@aol.com)
Wed Jan 15 15:45:30 2003


At Wed, 15 Jan 2003, Dawn wrote: >Thank You Dawn -

I really appreciate your thoughts and support. I am new to this site and quite overwhelmed with all the information and support among everyone. I have been wanting to try another treatment path (other than surgery) and with your positive words and ideas, I'm realizing that there IS another path and plan on researching my brains out!

Thanks again and I will keep writing! Christine

>Dearsert Christine,
>I am so sorry you suffer so. Please consider taking meds at this point.
>Look for the IAS patient advocate in the paitent advocacy section for
>your state/area,or even write to Dr. Wiseman (takes him a bit to get
>back but he always does) to find a doc in your area for a second
>opinion. There are many docs out there sensitive to our plight who take
>a conservative role in the treatment of our needs and are sympathetic to
>our need of pain control.
>Damn, some of us grow adhesions just like dandilions.
>I use a drug called neurontin that is non narcotic and has help give me
>back some of my life lost to pain. There are other non narcotic ways to
>control pain as well if you are concerned about being on narcotics. We
>can help with suggestions but most of all you do not have to suffer this
>alone. The effexor is a good thing, do not feel ashamed as anybody
>going through what you are would be depressed and the added seritonin
>you lost to the pain will help. A good pain specialist can be a
>godsend. Please go throught the message board archives and read the
>many educational post by Helen Dynda and others. I am sure if you wrote
>to her she could pointt out different things that may help with more
>specifics of your plight. Do not be afraid to contact her she is very
>kind and she is "the man" as far as research is concerned.
>More surgery could make things worse. If you are new to the sight( and
>forgive me if you are not as I would never want to sound condecending to
>a fellow sufferer)...many have had surgery each year only to lose more
>time and function to the regrowth of their adhesions. using this site
>to help with your education will help you deal with your doctors by
>being able to responsibly advocate for you self with an ative knowledge
>of your conditions. Please know that hope is getting so close. there
>are trials going on as we speak for a new generation of liqiud adhesion
>barriers. Many are starting to leaves the country to have them applied
>with wonderful surgeons who perform adhesiolysis all the time. The new
>liquid barriers are proving to be very successful in Europe and
>Australia. Ha and here is more irony...airfare included it is cheaper
>to leave the country than to pay out of pocket for one of the adhesion
>specialist here in the US.
>Dear dear Christine we are here and I will leave this ramble now for you
>to consider. please forgive any spelling atrocities as I am on my first
>cuppa joe.
>Feel free to contact me at the above email...even just to rant and rave,
>I won't mind one bit I have done it myself on many occasion. You can
>rant here on the board too...we are all here to get through this
>together.
>God Bless and hang on. You are very brave to go throught so many scary
>things already. You have what it takes to get through this and make it
>to the other side to hope.
>Much love,
>Dawn
> At Tue, 14 Jan 2003, Christine wrote:
>>
>>I have finally hit the stage of being absolutely frightened! I just had
>>scope surgery to remove adhesions (for the 5th time) in August 2002. As
>>of December 11, 2002, the exact same pain returned! I made an
>>appointment with the surgeon for the end of January 2003, to see what we
>>can do.
>>
>>In the past, I have been able to go a few years in between sugeries but
>>this time I only went a couple of months with relief.
>>
>>My adhesions started out just obstructing my bowels and now they
>>continue to that along with plastering my liver to my body wall. I
>>think that hurts just as bad as the obstruction. With my liver in that
>>condition, I can't move in any direction without pain. Sometimes I even
>>see stars!
>>
>>I'm already on Effexor for the depression and am scared of going on pain
>>medication.
>>
>>If anyone has any thoughts - please share!
>>
>>Thanks
>>
>>--
>>Christine
>>
>--
>I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.
>

--
Christine

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