Re: Adhesions,Hirschbrungs Disease...Just so you know...

From: Helen Dynda (olddad66@runestone.net)
Fri Jan 31 17:10:13 2003


Just so you know...

I have sent a lot of information directly to Jess' email address. I included information about: Adhesions -- SprayGel adhesion barrier -- Dr. Kruschinski -- Kath Findlay's email address and the UK Adhesions website.

There is HOPE for better days ahead for Jess' brother.

Helen D.

~ ~ ~ ~

At Fri, 31 Jan 2003, jason h rachal wrote: >
>HELLO JESS,
>
>WE ARE SO GLAD YOU FOUND THIS SITE. AND TO WATCH SOMEONE SO SMALL SUFFER
>IS EVEN WORSE.. I AM A SUFFERER FOR ALMOST 8YRS.
>YOU HAVE COME TO THE RIGHT PLACE FOR HELP. YOU NEED TO GET AS MUCH
>INFORMATION ON ADHESIONS AND BOWEL OBSTRUCTIONS AND THIS IS THE PLACE TO
>HELP..
>
>HELEN PLEASE GIVE JESS ALL THE INFO THAT YOU HAVE GIVEN TO EVERYONE
>INCLUDING ME IN THE PAST TO HELP HER LEARN AS MUCH AS POSSIBLE..
>
>YOU AND YOUR BROTHER WILL BE IN MY PRAYERS AND LOTS OF HUGS NICKY
>On Fri, 31 Jan 2003 05:39:12 -0600 X_GRRL_83@hotmail.com (jess) writes:
>> hi
>> i feel bad sending you a message because i don't suffer from your
>> condition but my baby brother does.
>> at the moment he's in a chicldrens hospital and has been there for
>> the
>> last three months(yeah all over christmas and everything) the
>> problem is
>> it just doesn't seem to be getting any better and i was wondering if
>> you
>> could enlighten me a bit. i really don't understand everything
>> about
>> his condition and especially not the problems that have happened
>> prior
>> to surgerys!
>>
>> to give you a summary on it all basically: dylan was born 17th sept
>> 1999. he's just gone three and so far he's had at least a dozen
>> major
>> surgerys and at least two dozen minor.
>> when he was born they couldn't diagnose what was wrong for 11 months
>> and
>> we only found out then because he got dehydrated while on holidays
>> in
>> magaluf and a specialist spotted it then. he was given a colostomy
>> bag
>> and had a large part of his intestines removed as well as part of
>> his
>> bowel. he was great with the colostomy for a year and then they
>> tried
>> to reverse it but that failed so we were back to the colostomy
>> again. He
>> was so healthy with the colostomy so the left it for another year
>> to
>> give him a chance to gain weight and strength etc etc. so that
>> brings
>> us up to last november, he was brought back in for a reversal and
>> was
>> only supposed to be in for 3 or 4 days. but two days after the
>> surgery
>> they did a scan on his stomach and discovered the part of the
>> intestine
>> they had reattatched to his bowel was affected by the disease as
>> well so
>> it hadn't joined properly therefore allowing all the waste in his
>> system
>> to leak into his stomach giving his septicimia. we nearly lost his
>> that
>> time but hte doctors tried so hard to give him every chance at a
>> normal
>> life but it wasn't to be unfortunatly. they had to give him the
>> colostomy back but it's just been up and down since then. the
>> mia damaged his stomach so badly he can't absorb anything he
>> eats. i'm watching my little brother fade away to nothing day after
>> day
>> and it's killing my whole family and what makes it so much harder
>> is
>> that i don't understand why?
>> apparantly all the problems now are caused by obstructions in his
>> bowel
>> and intestine from adhesions or scar tissue.
>> please help me because it feels like we may lose him and i just
>> can't
>> seem to find anything positive at all on the net. nearly every
>> outcome
>> is either a colostomy for life or the patient suffers from vomiting
>> severe constipation among other things.
>> Is there any solution to this disease or will it just keep eating
>> away
>> at him untill theres nothing left?
>>
>> --
>> jess (Dublin, ireland)
>>
>> http://www.adhesions.org/forums/listcmds.htm
>>


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