Re: life ruined?
From: Dawn (dawn@naisp.net)
Wed Mar 5 03:32:33 2003
Dear John,
I agree with Jo. You need to see a ureologist and have ureodynamic
testing.
I recently had adhesiolysis and my bladder was found to be streched
across to my lg. intestine and liver. When the adhesions were cut down
I did not have to cathertrise myself anymore. Each time i went to
urinate on my own I did not think I could push enough to ever get it
out. Push like having a baby push. Exhasting.
A uerodynamic test and any other follow up can give the extent of any
voiding disfunction.
Best wishes,
Dawn
At Mon, 3 Mar 2003, Jo Eslick wrote:
>
>Hello John,
>
>I read your story with interest because some of the symptoms you
>describe are similar to my personal experience. As far as the urination
>and bladder control or rather the inability to empty your bladder
>completely is very familiar to me.
>
>I now self-catheterise four times a day to empty my bladder due to nerve
>damage as a result of my hysterectomy in Feb 2000. The diagnosis and
>subsequent management plan came about after a series of tests. Having
>scans alone isn't going to give the urologist the full picture, and a
>test called "urodynamics" needs to be performed. This test measures
>under controlled circumstances your ability to void - empty your
>bladder. If you haven't had any discussions with your doctors about
>this kind of examination I would suggest that you ask about it at your
>next appointment. It is possible that adhesions on the OUTSIDE of your
>bladder are preventing it from emptying or indeed filling to its normal
>capacity.
>
>The obvious difference between you and I is obviously gender and I am
>not sure exactly how this affects our anatomy in regard to bladder
>function. Again it is something that you need to discuss with your
>doctor.
>
>As for your breathing difficulties and weak heart, you need to be taking
>this seriously and demanding that your doctor investigate your symptoms
>thoroughly.
>
>I have a friend who has just undergone her twentieth adhesions surgery
>and adhesions continually interfere with her liver and diaphragm
>function. To see a very good slide showing adhesions attached to the
>diaphragm visit this URL: http://www.ntero.com/aboutadh.htm
>
>Please let us know how you get on with future testing.
>
>Yours in Friendship,
>Jo Eslick
>
>At Sun, 2 Mar 2003, John wrote:
>>
>>I had my colon perforate in Oct 2001 due colitis and a previous surgey
>>causing my to have an emergency ileostomy and exploratory surgery
>>Scar tissue goes from bladder to diaphragm
>>
>>My scar tissue never healed right and was tight and unfortable, but I
>>was still usually able to move around ok...when I would get tense my
>>scar tissue would get tighter
>>
>>My gut is still huge from the surgeries.
>>
>>All of sudden, in late December 2002 there was a hardening at the bottom
>>of my scar tissue. It became very uncomfortable and disabling. No
>>hernia has been detected. I really cant even lay comfortably. It feels
>>strange when i have to urinate, and it takes forever for the urine to
>>come out. Mulitple CT scans have shown nothing going on at my bladder.
>>Would an ultrasound pick something up better?
>>
>>I am also have a tightness in my diaphragm. Breathing is uncomfortable.
>>Also have a hiatal hernia and weak heart which might explain some of
>>this.
>>
>>Can anybody shed some light on whats going on? I feel like im going to
>>be dead soon. There more to the story, but im exhausted.
>>
>>--
>>John P
>>
>--
>Joanne Eslick
>Founder Australian Adhesions Support Group
>http://www.bombobeach.com
>NSW Australian Co-ordinator of
>International Adhesions Society
>http://www.adhesions.org
>
>--
>I am not a medical person, and all my messages are based
>on personal experience. I am a fellow adhesions sufferer
>reaching out to help others.
>
--
I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.