Re: Thank god I found all of you

From: Carolyn J Meadows (lilly-lady@insightbb.com)
Thu Mar 6 14:37:14 2003


Dear Meg Rose, A lot of us have been through similar situations. Your sounds bad. I just returned from Seligenstadt Germany, where Dr. Daniel Kruschinski did laproscopic surgery for my adhesions and used the spray jell to prevent them from returning. I am adhesion free and very happy. In my opinion and others he is the expert in this field. So kind, caring and very talented. His web site is http://www. EndoGyne.com and also his e-mail address is Daniel.Kruschinski@EndoGyn.com For more information e-mail Lisa Graven at lilylover5555@aol.com He is in my opinion the expert!!! Best Wishes, Carolyn Meadows

>----- Original Message -----
From: "Meg Rose" <mrose64@attbi.com> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Thursday, March 06, 2003 3:49 PM Subject: Thank god I found all of you

> I thought I was alone..crazy..I could list so many and I stumbled onto
> this and cannot believe my eyes.I have noone to talk to about my issues
> because noone really gets it.I can see I am not alone.What a relief.
> Maybe someone out in this big cyber-world can tell me I am on the right
> track.
> I need to share my history so you will know what has happened to me,as
> well as it may help to just get some of this off of my shoulders (as I
> am carrying alot)
> I will try to be brief so I don't tire you out.
> I NEED to know I will be o.k.
> In 1993 I came down with a pain under my belly button in March on a
> blustery Tuesday a.m.I took mylanta with no relief.I was not miserable
> but as time went on I was not having fun.I waited until Thurs.to go to
> an urgent care clinic as we had just relocated and did not have a dr.
> yet.The dr. gave me a mixture to drink and thought it may be an
> ulcer.If it wasn't better by the a.m. I was to call.It was not better
> it was worse so I called and was told to go to the e.r.It was 8a.m.and I
> went to the nearest e.r.My husband drove me in.At this point I could not
> stand or walk.I threw-up in the parking lotwhich was unusual because I
> just don't puke often.The e.r.did some tests (blood...white count a
> liitle highl,urine...fine etc.)Nothing really.The doc gave me some pain
> meds and cramping meds and said it was probably the flu and sent me
> home.By noon I was in tears.My husband picked me up and carried me to
> the car and back we went to the e.r.This time the doc did no more
> tests..only an x-ray.He saw a big fluffy white patch on my right and
> called it a "paucity"of air.He gave me more pain meds and anti-puke meds
> and instructed my husband to stop on the way home and get some milk of
> magnesium and a enema for me.I got home and took the m.o.m.and went to
> the toilet and did the enama.I thought someone had shot me.I landed on
> the floor and rolled around on the ground.My husband works nights and
> had been awake for 25 hours so he dosed and was not aware of me rolling
> around.At 8p.m.I went back to the e.r.This time they did an ultra-sound
> and found a cyst on my "left" ovary.They prepped me for surgery for
> 1p.m.At 1p.m. they told me I was bumped till 5p.m.They tried to keep me
> comfortable with morphine.The surgeon did a little hole to go in and
> found my appendix had ruptured.4 "s of my bowel had perforated.I was
> full of feces.She removed part of my bowels and gallbladder.the surgeon
> told my mom and sis that in her 20 years I was the worst she had ever
> seen.
> I stayed for 6 days and sent home.2 weeks later I had severe pain again
> and they found a pocket infection the had to drain trans-vaginally.That
> hurt like hell.2 cups of infection came out.And then 2 weeks later I was
> in severe pain again and the tried to go in my belly-button to remove
> that cyst on my ovary and they couldn't get in very easily.The surgeon
> told me it is as if someone opened my abdomen and poured honey in
> it.Everything was stuck together.I was 99% probability of being
> sterile.I do have 2 boys and was done having kids but still....
> I have had bowel trouble and mostly period problems but for the most
> part I came out of it pretty good.The period problems became worse in
> 2000.Very painful and never-ending.So I had a complete hysterectomy
> 5/2002.The OB said I was a mess.My ovaries crumbled.Every one of my
> organs was adhered to other organs.He had to chisel my uterus and tubes
> away so he could remove them.He put that sepra film in to prevent
> further adhesions.In June I came down with really bad buttox pain.My OB
> said it is common to have it after.My family doc treated it as back
> pain.I won't go into all those details butI have been in and out of the
> e.r.I have had injections in my back.CT...MRI...ETC.I kept saying it
> sure was coincedental this started after surgery.I have been on percocet
> for pain since June.It helps me so I can work and function.They tried so
> many anti-depressants.muscle relaxants,NSAIDS,etc.with no relief.I was
> sent to a pain specialist finally to get help as the percocet wasn't
> working as well.Of all the dr.'s the pain doc is the one who said it was
> not my back.He heard me.He listened,spent 2 hours talking to me and then
> talked to all the other drs.He said it is in my pelvic area.Deep in my
> butt to the right.He sent me to another OB who I saw yesterday who said
> he was glad he wasn't the one to do my hysterectomy because it was so
> difficult(he had the path in front of him).He told me it sounded like
> ADHESIONS!!!!!He said they can attach anywhere and strangle your nerve
> endings.They can attach to your spine.They wrap around anything.Is this
> true??He told me surgery in my case is not an option as it can create
> more.He said it is going to be tough to try and find the exact area.He
> said they may not.WHAT...DID I HEAR YOU RIGHT???
> Can this go on forever???Can they really not find the source of this
> unbearable pain???This is ruining my life.It is putting my job in
> jeopardy.My familt is suffering along with me.I am now on 75 mg.
> duagesic patch which helps but I still need my percocet every 4 hours.I
> am depressed yet awake all night from the pain.I have meds that help for
> 3-4 nights and then stop (Trazadone)helping me sleep.How many more days
> do I have to take all this med?Please tell me this will get better.I am
> not a very good patient.I am so tired of drs.,meds and being a guinea
> pig.I am scared that my meds will stop helping completely.How do you
> live with chronic pain??How do you take a vacation from yourself??How do
> you want to keep living??HELP PLEASE.
> Thankyou in advance
>


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