Re: Thank god I found all of you

From: Rainchild (rainchild@cableone.net)
Thu Mar 6 18:18:05 2003


OMG, Carolyn, you are at the right place!!! On this site, we all have adhesions. We know about your pain and we CARE!!! Your only hope is Germany! There is a doctor there that has the expertise and the means of doing surgery and getting rid of your adhesions!!! There are numerous things that you need to arm yourself with.....KNOWLEDGE IS POWER!!! And if you look in the archives, you will find everything that you need to know about adhesions. Take them to your doctors and inform your family members. We care and understand all about your pain. If you need more info on Germany and Spray-Gel, which is your only hope, there are people that you can contact and will give you that info. Just don't give up!!!! When I came to this site back in November 2002, I thought that I was the only one in the world who had this horrid disease. I thought that I suffered alone. I didn't know anything about adhesions and now, I'm going to Germany on Monday to have Dr. Kruschinski do surgery on me and put in the Spray Gel. I have been told that my life is in danger because of my kidney shutting down due to adhesions. I've had them on my liver and the pain that goes along with it. My ovaries, intestines, liver, kidney, abdominal wall, everywhere imaginable is covered. I am disabled from it....I don't know how you manage to work and keep up with your family. But you must be a fighter is all I can say. Learn everything you can about it and don't stop until you get answers. I feel so bad that you're hurting soooooo bad. But remember that there is hope and it's just around the corner. If you can't get to Germany, there is a doctor in PA that has had great success too.....about 75-80% success. The SprayGel is still in clinical trials in the US, but it will probably be approved before long.....maybe a year or two, but it will come, I hope! Take care and I pray for your comfort today. You have many in this site that can and will give you this knowledge that you need. I'd say to write to me, but I'm leaving very soon, so I wouldn't be around to answer your questions....I'm not as qualified as many of the women that have been on this site for so many years. I'll keep you in my prayers.

God Bless dear Carolyn, Tonya

>----- Original Message -----
From: Carolyn J Meadows <lilly-lady@insightbb.com> To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com> Sent: Thursday, March 06, 2003 4:06 PM Subject: Re: Thank god I found all of you

>

>> ----- Original Message -----
> From: "Carolyn J Meadows" <lilly-lady@insightbb.com>
> To: "Multiple recipients of list ADHESIONS"
> <adhesions@mail.medispecialty.com>
> Sent: Thursday, March 06, 2003 5:38 PM
> Subject: Re: Thank god I found all of you
>
> >

>> > ----- Original Message -----
> > From: "Meg Rose" <mrose64@attbi.com>
> > To: "Multiple recipients of list ADHESIONS"
> > <adhesions@mail.medispecialty.com>
> > Sent: Thursday, March 06, 2003 3:49 PM
> > Subject: Thank god I found all of you
> >
> > > I thought I was alone..crazy..I could list so many and I stumbled onto
> > > this and cannot believe my eyes.I have noone to talk to about my
issues > > > because noone really gets it.I can see I am not alone.What a relief.
> > > Maybe someone out in this big cyber-world can tell me I am on the
right > > > track.
> > > I need to share my history so you will know what has happened to me,as
> > > well as it may help to just get some of this off of my shoulders (as I
> > > am carrying alot)
> > > I will try to be brief so I don't tire you out.
> > > I NEED to know I will be o.k.
> > > In 1993 I came down with a pain under my belly button in March on a
> > > blustery Tuesday a.m.I took mylanta with no relief.I was not miserable
> > > but as time went on I was not having fun.I waited until Thurs.to go to
> > > an urgent care clinic as we had just relocated and did not have a dr.
> > > yet.The dr. gave me a mixture to drink and thought it may be an
> > > ulcer.If it wasn't better by the a.m. I was to call.It was not better
> > > it was worse so I called and was told to go to the e.r.It was 8a.m.and
I > > > went to the nearest e.r.My husband drove me in.At this point I could
not > > > stand or walk.I threw-up in the parking lotwhich was unusual because I
> > > just don't puke often.The e.r.did some tests (blood...white count a
> > > liitle highl,urine...fine etc.)Nothing really.The doc gave me some
pain > > > meds and cramping meds and said it was probably the flu and sent me
> > > home.By noon I was in tears.My husband picked me up and carried me to
> > > the car and back we went to the e.r.This time the doc did no more
> > > tests..only an x-ray.He saw a big fluffy white patch on my right and
> > > called it a "paucity"of air.He gave me more pain meds and anti-puke
meds > > > and instructed my husband to stop on the way home and get some milk of
> > > magnesium and a enema for me.I got home and took the m.o.m.and went to
> > > the toilet and did the enama.I thought someone had shot me.I landed on
> > > the floor and rolled around on the ground.My husband works nights and
> > > had been awake for 25 hours so he dosed and was not aware of me
rolling > > > around.At 8p.m.I went back to the e.r.This time they did an
ultra-sound > > > and found a cyst on my "left" ovary.They prepped me for surgery for
> > > 1p.m.At 1p.m. they told me I was bumped till 5p.m.They tried to keep
me > > > comfortable with morphine.The surgeon did a little hole to go in and
> > > found my appendix had ruptured.4 "s of my bowel had perforated.I was
> > > full of feces.She removed part of my bowels and gallbladder.the
surgeon > > > told my mom and sis that in her 20 years I was the worst she had ever
> > > seen.
> > > I stayed for 6 days and sent home.2 weeks later I had severe pain
again > > > and they found a pocket infection the had to drain

trans-vaginally.That > > > hurt like hell.2 cups of infection came out.And then 2 weeks later I
was > > > in severe pain again and the tried to go in my belly-button to remove
> > > that cyst on my ovary and they couldn't get in very easily.The surgeon
> > > told me it is as if someone opened my abdomen and poured honey in
> > > it.Everything was stuck together.I was 99% probability of being
> > > sterile.I do have 2 boys and was done having kids but still....
> > > I have had bowel trouble and mostly period problems but for the most
> > > part I came out of it pretty good.The period problems became worse in
> > > 2000.Very painful and never-ending.So I had a complete hysterectomy
> > > 5/2002.The OB said I was a mess.My ovaries crumbled.Every one of my
> > > organs was adhered to other organs.He had to chisel my uterus and
tubes > > > away so he could remove them.He put that sepra film in to prevent
> > > further adhesions.In June I came down with really bad buttox pain.My
OB > > > said it is common to have it after.My family doc treated it as back
> > > pain.I won't go into all those details butI have been in and out of
the > > > e.r.I have had injections in my back.CT...MRI...ETC.I kept saying it
> > > sure was coincedental this started after surgery.I have been on
percocet > > > for pain since June.It helps me so I can work and function.They tried
so > > > many anti-depressants.muscle relaxants,NSAIDS,etc.with no relief.I was
> > > sent to a pain specialist finally to get help as the percocet wasn't
> > > working as well.Of all the dr.'s the pain doc is the one who said it
was > > > not my back.He heard me.He listened,spent 2 hours talking to me and
then > > > talked to all the other drs.He said it is in my pelvic area.Deep in my
> > > butt to the right.He sent me to another OB who I saw yesterday who
said > > > he was glad he wasn't the one to do my hysterectomy because it was so
> > > difficult(he had the path in front of him).He told me it sounded like
> > > ADHESIONS!!!!!He said they can attach anywhere and strangle your nerve
> > > endings.They can attach to your spine.They wrap around anything.Is
this > > > true??He told me surgery in my case is not an option as it can create
> > > more.He said it is going to be tough to try and find the exact area.He
> > > said they may not.WHAT...DID I HEAR YOU RIGHT???
> > > Can this go on forever???Can they really not find the source of this
> > > unbearable pain???This is ruining my life.It is putting my job in
> > > jeopardy.My familt is suffering along with me.I am now on 75 mg.
> > > duagesic patch which helps but I still need my percocet every 4
hours.I > > > am depressed yet awake all night from the pain.I have meds that help
for > > > 3-4 nights and then stop (Trazadone)helping me sleep.How many more
days > > > do I have to take all this med?Please tell me this will get better.I
am > > > not a very good patient.I am so tired of drs.,meds and being a guinea
> > > pig.I am scared that my meds will stop helping completely.How do you
> > > live with chronic pain??How do you take a vacation from yourself??How
do > > > you want to keep living??HELP PLEASE.
> > > Thankyou in advance
> > >
> > > to the unsubscribe form at

http://www.adhesions.org/forums/listcmds.htm > > >
> >
>


Enter keywords:
Returns per screen: Require all keywords: