Dear Brenda~fear of going thru it all again~it is not normal!
From: Dawn (dawn@naisp.net)
Sun Mar 23 06:00:18 2003
Dearest Brenda,
Oh god how I wish I could take this all away for you.
I will speak of myself and what I have seen others do.
We have been thru all kinds of testing~all negative for anything mostly,
told to live with it and you are a hypocondriac(sp)and other various
demoralising comments
thoughtlessly tossed our way as we desparately search for help and
answers.
I know I had started to treat myself medically, Alot! as this barrage to
my self esteem was too much...I knew I was not crazy, just in pain.
I stopped going to the docs and they were just as happy to see me out of
thier hair...we had a lovely repore, I called when I need more meds and
they called the pharmacy. You must keep in mind we are a terrible
frustration to them. I am sure they don't do this cuz they don't like
that look on our face.
I was taking herbal cures, laxitives, enemas and if someone had told me
to
eat dirt( I am rippin off someone elses line here) I would have done it.
I though I was being so safe by checking for drug interaction thru the
online PDR.
So many trips to the ER, all with some god awful test or worse the tube.
Ya I was in no hurry to go.
I look back and I see how lucky I was I did not kill myself by trying to
help myself. Lucky not to have a portion of bowel blow out and perhaps
kill me as I grew more and more distended. So very lucky.
Brenda I urge you to call your doctors right away...you need not suffer
till tues. and you do not know if your luck will ride with you that
long.
I know it is scary, I know it seems like too much effort to get up and
go...much safer to stay home and ride it out. Perhaps it will end with
a shot or two of morphine and out the door you go but we are not
doctors. You could be in great jeapordy. Please Brenda, call em. At
least ask if there is anyting you can do at home...you know what they
are going to say when you make that call though...and you will make it
through whatever they do. We are all here for you and our prayers are
mighty. I owe you an eamil too. I'll get to that. Never give up
Brenda...that is the adhesions best friend...no hope...things are
happening to have hope for...weather we like it or not right now we are
the pioneers for ARD.
Love and prayers for you dear Brenda,
Dawn
--
I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.