Re: Need advice, (kidney surgery and/or pain management)

From: I and J (ipnewwave@aol.com)
Wed Apr 2 06:59:49 2003


At Tue, 1 Apr 2003, Jayne wrote: >Good morning Jayne: i decided to write again, it does seem to help. Yesterday
I was bordering depression and anxiety, but I feel better today. Joe (my husband) and I decided we are going to defintely go see Dr. Reich in PA. We have an appointment on 3/8. He is suppose to be the best, and I just want to get fixed. We figured if the last surgery lasted 1 1/2 years and I still do not have problems in my digestive area- then there should be a cure for my kidney area. The last dr. said it would be too risky to operate on my kidney. He feels my kidney and liver are fused together. I don't know. I think my kidney is adhered to my ribcage again. Well, I'll keep you posted. Have a great day, Irene >>>Hi Jayne: Thanks a million for answering. It actually made me smile,
>>where smiles are rare for me lately. I had a million tests for stones,
>>actually
>
>You're welcome, that's what we're all here for to brighten one another's
>day and act as sounding boards.
>
>>I just returned home to New York from Pennsylvania today. I was hoping
>>for stones.
>
>This made me smile actually. When the pain continued, under my right
>rib long after the stones and stent were removed, I had many
>ultrasounds, more IVP's and even a couple of exploratory surgeries and I
>never thought I would see the day when I would wish for kidney stones.
>That way the pain could be explained but when no stones were found it
>drove me crazy because you then realize there is something else wrong.
>Funnily, enough I don't get this pain as often now thank goodness so
>whatever it was settled down.
>
>>To answer your question about scar tissue on ureters -YES- they can grow
>>there too. I had that removed on my last surgery and the dreaded stent
>>was placed in one of the ureters- UGH, I hated that stent too.
>
>And the stents are so painful, aren't they? I've been through the ringer
>with surgeries and constant pain, like we all do here, but man, that
>stent beat them all out.
>
>>Basically on paper I am a perfect speciman of health. In reality, I am
>>in pain 24/7. If I don't have pain medication I cannot even get off the
>>couch and I cannot speak. For some reason speaking increases the pain.
>>I have found vicodin the best- once there is enough in me- I am good for
>>a couple of hours. Percoset, I did not like at all- it gave me heart
>>palpatations.
>
>The problem I have with all my painkillers is I have to take Gravol with
>them and so if I'm driving or have an appointment to attend or whatever
>I can't take the painkillers.
>
>I've only been on Percocet for about 6 weeks and I'm having a hard time
>adjusting to it because it's the slow release form. To me, it seems to
>take longer to dull the pain and I thought once my body got used to it
>it would help but I'm finding it's not.
>
>I don't know if this is connected to the Percocet or not but since
>taking it I have had at least three migraines that were so severe I
>vomited for hours. I don't usually throw up with my migraines (thank
>goodness because I'm such a baby when it comes to nausea/vomiting - I
>can take anything but that) no matter how severe they got but now all of
>a sudden I get three in a row. One night it was so bad I took a
>sleeping pill to make me sleep the pain away.
>
>>Thank goodness for my husband, because I would not be capable of making
>>any decisions or any doctor appointments. He researches until he makes
>>everyone in this house crazy. He puts up with a lot, I just feel so bad
>>for him, because he worries so much, I just wish that I can have my life
>>back so we can get on with ours.
>
>I can relate to this. My family have been real troupers they have been
>through so much with me but are always there no matter what. When I had
>my knee replacement, in 1996 at the age of 36, I was flat on my back for
>8 months in a machine that would bend my leg for me and my family did
>everything they could.
>
>My family doctor is the best! He is so patient with me, he doesn't make
>me feel like an idiot when I ask so many questions or suggest that maybe
>we should try a different angle to pinpoint what could be wrong with me
>and he always discusses the ins and outs of any medication he gives me
>or procedures he sends me for.
>
>>Have you ever heard of this dr. harry Reesh (probably spelled wrong)?
>>He is in Pennsylvania. We do have an appointment with him on the 8th. I
>>wonder after today, when the surgeon said the surgery is too risky. Do
>>you think this Dr Reesh can perfom miracles? I am not quite sure. My
>>medication is wearing off, so I must go and ly down AGAIN. It was
>>really nice talking to you.
>
>I live in Ontario, Canada and so, no, I am not familiar with Dr. Reesh
>and because of this I can't comment on his skills, sorry.
>
>It was good chatting to you to, Irene. Keep your chin up we're here if
>you need us.
>
>Take care
>
>--
>Jayne
>Ontario, Canada
>

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