Hi Everyone. I have been to this site numerous times before, and
everyone here is so helpful, that is why I am writing now. It has been
awhile so I will give you a background before I address my problem. (
Bare with me ....it's a long background.) I have undergone multiple
surgeries for chronic abdominal/pelvic pain since 1997. It was thought
that I had endometreosis (sp?) at first, but was later reprised. I went
to see an OB/GYN in March of 1997, he immediately scheduled a diagnostic
lap. which showed minimal endo, with minimal adhesions from an
appendectomy in 1994. He decided to put me on Depo-Lupron, which worked
for the first month. I went back to see this doc in June, the pain that
I had prior to the surgery had gotten progressively worse. He scheduled
a Uteral Sacral Nerve Ablation, which was done via laproscope. (this
was done in December of 1998.) This surgery really didn't help me much,
just caused me more pain. So, again I went back, this doc then
scheduled a Presacral Neurectomy which was done by laparotomy( surgery
was in April 1999) After this procedure, I was in Hell. Constant pain
all the time,not just periodically like it was before the surgery. At
this point I was not only frustrated but getting extremely pist off. (
Sorry for the potty mouth, even talking about it gets me angry) So, I
went back. I told this doc that I was worse off than before and he
needed to help me. So, what does he do, he recommends the removal of my
right ovary. Since my pain is mostly right sided, I agreed thinking
that was the proble. Well, I went in October of 2000, to my surprise,
woke up to my doc leaning over the gurney telling me that he couldn't
remove my ovary due to the fact that it was adhered to the pelvic wall.
He said that it had to be removed by laparotomy. ( I should have
realized at this point that this doc was a quack. Any idiot knows that
when you sign a surgical consent it gives the doc permission to treat by
any and all means. Why put me through another surgery for the same
thing? SO 2 weeks later I was back in the OR. I ended up having a Total
Abdominal Hysterectomy in April of 2001. When I went to see this doc
for my year post op, he asked me how I was, I told him, my life is hell.
I wake up in constant severe pain and I spend the rest of my day crying,
doubled up on the couch. He looked at me and said, there is nothing
more I can do.
So, on went the search to find someone who could help me. While I was
looking, I spent countless nights in the local ED in pain, with them
looking at me like I was a drug addict looking for a fix. Not to
mention that everytime I was in the ED I had to be carried in screaming
in pain. This got old real quick. I met a doc who was an angel. He
basically told me that I needed not to suffer anymore, it was right nor
was it ethical to let me go on the way I was going. So, he put me on
different meds, strting with Percocet, then Morphine, finally the
miracal drug OxyContin. I could not beleive how my life had changed,
just by one little pill. I had my life back, my daughter had her Mommy
back. This docotr was my life saver. Until he left the practice. Then
the current doc took over and said "I don't think it is appropriate to
prescribe OxyContin for Intractable Pain." He pulled me off it, without
warning, just stopped. This current doc refuses to give me anything for
pain. He claims he doesn't feel "comfortable".
He refered me to a surgeon, I went in tears, telling this guy I couldn't
take much more of this pain. I was becoming suicidle. He said well
let's go take a peek. So, I underwent another surgery. It showed that
half of my inside were adhered to my abdominal wall.( This was Oct.2002
) So, for 2 weeks I was pain free, well almost pain free. Then the pain
came back. Again, and again there is nothing anyone can do for me.
In November I was seen in the ED, Doc gave me 2 types of medicine,
didn't work, he wanted to admit me for pain control, but my admission
was denied by the attending say it was unacceptable.
I need help. I don't know what to do anymore. I live in a small town
that doesn't have much in the way of medical care. I have state
insurance. The closest teaching hospital is in Boston which is 2 hours
away from me, and I have no car. I am in excruciating pain and I can't
take it anymore. There's only so much I can "block" out. I haven't
slept in 3 days, can't eat. Please does anyone know of anything I can
do? Iam eating Motrin like M&Ms, tried hot baths, heating pad,ect...ect.
Thanks for listening. Sorry it is so long.
God Bless All Of You!
(((Gentle Hugs))))
Bonnie