>----- Original Message -----
From: "Jayne" <jam001@cogeco.ca>
To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.medispecialty.com>
Sent: Sunday, April 06, 2003 6:15 PM
Subject: Re: Excruciating rectal pain
> Hi Jenny,
>
> Sorry to take so long to get back to you but this weather we have been
> having up here in Ontario, Canada has had me laid flat out for days with
> a migraine that I just can't get rid of. I was so desperate the other
> night I took sleeping pills to make me sleep through one of them.
>
> Anyway, right now, I still have a massive migraine so will have to make
> this short and sweet I just didn't want you to think that I was ignoring
> you.
>
> Thanks for sharing your story. My tailbone pain started after a pelvic
> surgery and at first I couldn't pinpoint why but then I realized where
> it came from and asked the surgeon why. He told me he had attached my
> vagina to my tailbone and so voila I found the answer.
>
> But then a few months later I asked him why I still had the pain in my
> tailbone and was there anything he could do to ease it. He then told me
> that he didn't attach my vagina to my tailbone but to my sacrum (or
> something) which was higher up.
>
> I agree that with my record of adhesions after surgery that there are
> adhesions in my rectum. I also think that because the back wall of my
> vagina has been operated on so much that it is sticking to my rectum.
>
> The unfortunate thing about this is my family doctor (who has been a
> Godsend and I wouldn't change him for the world) keeps telling me that
> even if I did have adhesions there is no test that will tell me whether
> I do have them or not. Wouldn't a laproscopy tell you this? I would
> imagine that because it's less invasive that this would be the ideal way
> to find out if adhesions are the culprit.
>
> When I am having an attack of this rectal pain I am incapcitated for
> days. Then just as quick as it came it disappears and then returns a
> few months later.
>
> Anyway, I'm sorry but my head is just pounding so I'll have to go before
> it gets to the point of vomiting again. I wish the Percocet would work
> for migraines but if anything this drug has made them worse, which seems
> daft to me.
>
> Take care
>
> Jayne
> Ontario, Canada
>
> At Tue, 1 Apr 2003, Jenny wrote:
> >
> >Dear jayne,
> >
> >I have had similar pains. I used to tell my husband that my butt hurts.
> >I know it sounds crazy, but my butt hurts real low down around the
> >tailbone. This was around Feb 2000. I had just had a laparotomy
> >removing a left hemorrhagic cyst, the left fallopian tube, adhesions and
> >also 3 inches of the sigmoid colon because the adhesions were so dense
> >and broad that they couldn't get them out. That was the only way they
> >could get them out was taking that part of the colon. About 4 months
> >after that surgery and telling my husband my butt was hurting, we
> >decided to have a hysterectomy. The adhesions were back and so was the
> >endo, and another hemorrhagic cyst that wouldn't go away no matter what
> >we tried. When my doctor opened me up to do the hysterectomy, he said
> >he had never seen so many adhesions in all his 12 years of practice,
> >only 4 months since the last surgery. The adhesions were wrapped around
> >the rectum and and it bent down to a 45 degree angle. The right ovary
> >and fallopian tube was also wrapped around the rectum. He said he
> >didn't know how I had been having a BM at all. After that surgery my
> >pain in that area went away, at least for a few months. Then I had
> >another adhesiolysis laparoscopically. I had no relief from that
> >surgery but found that the rectum was being pulled and attached to the
> >top of the vagina. The pain actually intensified. About 4 months after
> >that surgery I had to have rectocele repair. The doctor decided to
> >clean out the adhesions as well. I was having that same pain in the
> >rectum and lower back or tailbone right in my butt. The rectum was
> >again being pulled up and attached to the top of the vagina. Any time I
> >have had that pain and they have done surgery to remove the adhesions,
> >the pain goes away for a few months until the adhesions get really bad.
> >I am having the same pains again. Sometimes I get sharp pains right up
> >the rectum as well as the pain around the tailbone in my butt. I have a
> >really hard time sitting for any amount of time. And when I have sat
> >for a while, it takes several minutes before I can get up. WHen I do
> >get up, I feel like something is being ripped away from my tailbone
> >inside. It is a very strong pulling and is very painful. I am not a
> >doctor, but from my own experience and from the surgeries that you have
> >had I would guess that there are some adhesions around the rectum
> >causing you pain. I am in the same situation as you, my repair didn't
> >even last 8 months. Now I have a cystocele and a rectocele and doctors
> >who are too afraid of the adhesions to touch me. And now my bladder is
> >having functioning problems, probably due to adhesions, as well. I sure
> >hope that you can get some relief. My suggestion is either try to go to
> >Germany so they can use the SprayGel in you, or try to see the PA
> >doctors. If you can stick it out until the SprayGel is approved and
> >could go to your own surgeon that would work too. I know I am not going
> >to let anyone touch me unless the SprayGel is right there waiting to go
> >on my insides. I wish you all the best and hope that you can find and
> >get the help you need. If nothing else, try to get some pain management
> >until you can get your adhesions and other problems taken care of. Take
> >care and feel free to email me any time.
> >
> >Love and hugs,
> >Jenny
> >
> >At Mon, 31 Mar 2003, Jayne wrote:
> >>
> >>Excruciating rectal pain
> >>
> >>For about two years now I have been experiencing excruciating rectal
> >>pain high up in my rectum. The pain is also felt behind my abdominal
> >>incision and when I sit down it feels like something is being pushed up
> >>into my lower pelvic region and makes both the abdominal and rectal pain
> >>worse.
> >>
> >>Sitting is unbearable and the episodes last about 3 - 4 days. They then
> >>disappear and return a few months later. It feels like I'm constipated
> >>but I'm not, my stools are soft and the pain is even unbearable when
> >>passing gas.
> >>
> >>At first, I thought it was constipation and took laxatives but they made
> >>the pain worse and added gas and cramps to the equation.
> >>
> >>Since my vaginal prolapse surgery, in Feb 2001, I have had coccyx pain
> >>so bad that it has brought me to tears. Sitting was impossible unless I
> >>used a doughnut cushion. X-rays showed a hairline fracture of the
> >>coccyx but apparently nothing could be done for it. I even suffered
> >>through a 6-week course of epidural cortisone shots but they didn't work
> >>either.
> >>
> >>I have a history of adhesions (I used to frequent this site regularly
> >>until more surgery kept me away from the computer for a long time) and I
> >>was wondering if the above symptoms could be adhesion related?
> >>
> >>My potted abdominal/rectal surgical history is as follows:
> >>
> >>1. Appendectomy - adhesions after surgery - 1971
> >>2. Fallopian Tubes tied - Feb 1988
> >>3. Vaginal Hysterectomy and birch procedure - May 1988
> >>4. Three rectocele repairs - between 1991 - 2000
> >>5. Three cystocele repairs - between 1991 - 2000
> >>6. An additional birch procedure - 1991
> >>7. Gall bladder removal - adhesions surrounding it - April 1999
> >>8. Pelvic floor tightening - three times - during above surgeries
> >>9. Vaginal prolapse repair- vagina was protruding outside the opening -
> >>Feb 2001
> >>10. Removal of vaginal scar tissue - June 2002
> >>11. Repair of this vaginal scar tissue removal after suffering from
> >>painful intercourse. - Sept 2002
> >>
> >>Additional health problems include osteoarthritis, fibromyalgia, and a
> >>failed total knee replacement that left my leg fused and unable to bend.
> >>This apparently makes it awkward for my surgeon to perform pelvic
> >>surgery and I was told he has to put me in a position that probably
> >>caused the fracture of my coccyx.
> >>
> >>I have been told I have very weak pelvic floor muscles by three
> >>different OB/GYN's hence the reason I get all these prolapses and had my
> >>hysterectomy at the age of 27 years.
> >>
> >>I do have hemorrhoids but as far as I can tell I only have one
> >>protruding out of the anus. When I wipe myself thought it feels like
> >>there is a large lump in my anus.
> >>
> >>I am leaning toward this pain being related to adhesions as I have had
> >>so much surgery to the back wall of my vagina and rectum.
> >>
> >>To top it all I had a cystoscopy a few weeks ago and my Urologist told
> >>me that my bladder has dropped and looks like it's protruding into my
> >>vagina. She recommended that I see a surgeon that she knows to take
> >>care of it. When I asked why I couldn't have my own OB-GYN perform this
> >>she gave me the impression that it probably wouldn't be a good idea. My
> >>own family doctor said the same thing.
> >>
> >>So now I am trying to sit here still in excruciating pain with another
> >>possible surgery on the horizon to correct the last three pelvic
> >>surgeries I had done.
> >>
> >>Can anyone give me some idea of what they think this could be?
> >>
> >>Thanks and take care
> >>
> >>--
> >>Jayne
> >>Canada
> >>
>