>----- Original Message -----
From: "Kristie" <extrafeetmom@yahoo.com>
To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.medispecialty.com>
Sent: Saturday, April 12, 2003 7:37 AM
Subject: Re: germany?????
> Hi...I have a question.....Can't some doctor go visit with the Dr K in
> Germany and learn what he is doing? Seem's to me...it is a no brainer
> that over 600 people from this quilt would be his patients......just
> wondering.
> Kristiee
>
> At Sat, 12 Apr 2003, Dawn wrote:
> >
> >Dear Heidi,
> >Boy, I know how you feel. Are you having bowel problems too? Thats
> >probably why the docs want you off vicodan. Most pain killers given the
> >ARD sufferer are narcotic and cause bowel motility problems ...an awful
> >catch 22. I was also put on duragesic patch and wow it made a world of
> >difference. I also started having problems urinating though...then to
> >self cathing all the time. Not good! The ureo/gyn said I had nerve
> >damage. I started to waste away.....off to Germany and my hero...Dr.
> >Daniel Kruschski. When he preformed my adhesiolysis he found my poor
> >bladder attached to my liver and streched across to my bowels. 36 hours
> >after surgery I asked to leave to hospital as I felt brand new
> >again....still having problems peeing...Dr. K. said take off the
> >patch...well I was terrified to but when I did I had no more problems
> >peeing anymore. You see if you read the insert of the patch you will
> >find one of the side effects is urinary retention from my experience it
> >is big time retention. Before I went to germany I had gone to ER
> >locally as I could not pee at all...they cathed me and told me to come
> >off the patch...I did...then tests at the uero/gyn...after it was
> >decided it was nerve damage they said go back on the patch and well the
> >next thing I know I was in Germany. Between the distortion of my
> >bladder internally with the addition of the patch and the side effect of
> >urinary retention...all the pushing in the world would not produce pee.
> >As to being addicted to the patch..I know many worry about this...
> >The first time they told me to take it off it was difficult and I went
> >thru tollerable but frustrating withdrawl symptoms but the second time I
> >went off...48 hour after surgery with Dr. Kruschinki I took the patch
> >off and never looked back, no withdrawl, I was no longer in pain! I am
> >happy to say that thru the slew of meds I was on I am down to only 3
> >pills a day total and will soon be weaned off pain meds and others soon.
> >Sounds like you have a good doc that believes in your pain if you are
> >given duragesic patch. If this was your surgeon as well then they are
> >pretty sure I would imagine that you are in pain when they saw the mess
> >caused by ARD inside you. Dearest Heidi, Please, when you feel well
> >enough or have someone willing...get your operative report and read
> >through it. Secure your surgical consent form too while your at
> >it...always good to have for every one.
> >You will see better exactly what happened to you during surgery....I
> >find you get a little chat from your surgeon after you wake up from
> >surgery...while you are throwing up or whatever post surgical la la
> >state you are in, they usually tell you how well the operation went and
> >they'll see you in 6 weeks for a check up....hmmm. Thats usually good
> >enough for most folks but...
> >I think you'll be surprised by your op report. If you do find yourself
> >soon in pain again I would not hesitate to get the best and highest
> >success rate adhesiolysis from Dr. K. in Germany...you will see his
> >information in the sponsor section under Uero/Gyn. Contact Lisa ( his
> >IAS liason with contact info in the sponsor information) and send your
> >op reports to him.
> >He'll tell you if he can help you...most likely he can. I worry so that
> >many have adhesiolysis here in the states as they are desparate to be
> >out of pain. We in the states are no where near being able to perform a
> >proper adhesiolysis and for now all hope for relief lies it Germany...it
> >is your best chance to become pain free and adhesion free...for less
> >that the price of say a hyundai. The highest success rate of all, the
> >best surgeon who preform adhesiolysis, gassless laparoscapy ( the gas
> >itself can cause adhesion growth)...I can't say enough about that..no
> >gas pain after surgery and of course proper application of spray gel. If
> >I can be of further service to you please do not hesitate to caonact me.
> >Love,
> >Dawn
> >>
> >>Hello. I hope everyone is doing well. I had my laparoscopy done
> >>Thursday. Well, let me back up a few days. I went to the new pain
> >>doctor. He is so nice. Understood that I was indeed in a lot of pain.
> >>Asked if I would like for him to take over all my pain medications and I
> >>said yes. He told me to get off of the Vicodin. He instead wants me on
> >>Norco 10 mg and I can take no more then 8 a day right now. He also gave
> >>me Duragesic 25MCG/HR DIS JANS patches. I am not sure what those
> >>patches are but I know that for the first time in I don't know how many
> >>years I woke up in a small amount of pain. I was so happy! But then at
> >>the same time, scared because what if for some reason this doctor gets a
> >>hold of my old doctors and he sees that they never thought I was in that
> >>much pain? I have never been out of this pain before and I guess now I
> >>am getting paniced because I don't want to ever go back in that much
> >>pain again. Does that make any sense? Finally finding a doctor who says
> >>he will help you means getting the quality of my life back! Yes, it will
> >>be expensive because my insurance will only pay 80% and the medications
> >>are very expensive, but my life is worth that! And, I could possible
> >>work once these medications regulate my pain to a tolerable level. I
> >>suppose I need someone to calm me down and tell me that this isn't a
> >>dream and that someone is really going to help me.
> >>
> >>Okay, the next day, I had to get a root canal. My tooth is still in
> >>pain! UGH! The doctor told me to take Vicodin and the pain dr said nope
> >>take the Norco. Still taking the Norco and the patches. Wednesday
> >>night, the night before my surgery, I can't go pee! What the heck??
> >>Thursday morning, still can't pee very much. Get to the hospital and I
> >>tell the doctors. They put me under and gave me some meds for the
> >>possible urianry infection and put in a cathitar. I wake up with the
> >>cathater in and they take it out and told me to try to pee. I tried and
> >>I couldn't. The put the cath back in and I peed 400mg! They took the
> >>cath back out and, nope, couldn't pee again. Put it back in and, yep,
> >>there I go pee. So they had me go home with the cath in me. I was
> >>going fine in the cath at home until about the AM on Friday morning.
> >>Couldn't hardly pee at all. Had to go to the ER and they took the cath
> >>out and I peed a little bit on my own. I can go now without the cath,
> >>but I sit there for about 15 min until I fee like I went all I could go.
> >>Anyone ever had this problem?
> >>
> >>I go to the OBGYN tomorrow, and she said she removed a cyst on my left
> >>ovary. I am SO sore by my belly buttinand there is another cut on the
> >>right side.
> >>
> >>Any help on these concerns of mine I would really appreciate.
> >>
> >>Thank you all so much.
> >>
> >>--
> >>Heidi Jo
> >>
> >>--
> >>Heidi
> >>
> >--
> >I'm no doctor, just a fellow sufferer like you but I hope you consider me
a new friend.
> >
>