>----- Original Message -----
From: "Dawn" <dawn@naisp.net>
To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.medispecialty.com>
Sent: Saturday, April 12, 2003 8:53 AM
Subject: Re: germany?????
> Dear Kristiee,
> All the surgeons in the sponsor section of the IAS have been reviewed in
> person during actual surgery by the IAS to ensure that the highest
> quality adhesiolysis can be secured for us, the ARD sufferer. The IAS
> does so much for us behind the scenes that not many are aware of. If at
> all possible we should support the IAS financially as they continue to
> break new ground and advocate for us in so many ways. If anyone has the
> notion that the IAS makes money in anyway and I know some do...it is
> simply not the case. Nuff about that. Right now Germany is considered
> to be your best chance to be adhesion free, pain free. Many are tied to
> the states for insurance reasons and others are just plain scared to
> go...it is hard to accept they would be better off somewhere else than
> the good ol USA but this is the case for now. It is cost effective too.
> Compared to going to the surgeons here who have no effective adhesion
> barrier to work with and the cost involved by going out of your
> insurance parameters for some serious sticker shock procedures that do
> not incorporate all the effective parts of successful adhesiolysis. In
> Germany you have Dr. Kruschinski who I believe has the highest success
> rate of all these doctors at about 99% cure rate and I am a great fan of
> his gassless lap approach. One less thing (no gas) to cause new or
> reformed adhesions and none of that horrible pain from the gas post op.
> He has ample experience with all aspects of adhesiolysis and related
> conditions that may go hand in hand with this disease. Then you have a
> second look lap that can check the effectiveness of the initial surgery
> and see if any new adhesions have formed they can easily be dealt with
> then.( I was adhesion free for my second look surgery) Then of course is
> his experience with spray gel. Spray gel is the only effective barrier
> we know of for now and it still awaits completion of U.S. trials. My
> greatest fear for all is that once spray gel is approved that many will
> seek it's use from general surgeons throughtout the states and spraygel
> alone is not the answer...it is a combination of all factors mentioned
> above. I feel many will be worse off and I urge you all not to set
> great stow on it's arrival but to educate yourself on all that makes for
> a successful adhesiolysis. I know Dr. Reich is Dr. Kruschinski's
> partner in Germany and performs adhesiolysis there in addition to a Dr.
> Korell. I was just about on deaths door when I made it to
> Dr.Kruschinski...horrifying pain, fecal incontinance, self catherising
> and walking with a cane. Now I live each day free from all this and
> feel I have passed a point where I would heave felt the return of the
> adhesions based on past surgeries. Dr. K. is my hero but the
> information on the other surgeons are there for you to see as well. I
> urge you to review the information and make your own choice...having my
> life saved has undoubtly made me very biased. I just pray for this
> relief for all no matter how they get there or who they choose. We are
> just starting to see people return from Germany in numbers that are
> letting people see that relief is there right now!
> Please feel free to contact me if I can be of further help. Dr. K.'s
> liason here is Lisa Graven and her email address can be found in the
> Endo/Gyn sponsored ad on this site as well as the adlap surgeons and Dr.
> Lyons...I do my best to not
> let the board turn into a Germany advertisement as many people come to
> the IAS site for immediate help and support, all the information needed
> to make an educated informed discision lies right here in the message
> board archives and thru the sponser ads and their links. I do my best
> to keep my humble opinion to myself as this is a very tough, and
> personal choice but if someone asks me well...
> Love and pain free wishes for all,
> Dawn
>
> >
> >Hi...I have a question.....Can't some doctor go visit with the Dr K in
> >Germany and learn what he is doing? Seem's to me...it is a no brainer
> >that over 600 people from this quilt would be his patients......just
> >wondering.
> >Kristiee
> >
> >At Sat, 12 Apr 2003, Dawn wrote:
> >>
> >>Dear Heidi,
> >>Boy, I know how you feel. Are you having bowel problems too? Thats
> >>probably why the docs want you off vicodan. Most pain killers given the
> >>ARD sufferer are narcotic and cause bowel motility problems ...an awful
> >>catch 22. I was also put on duragesic patch and wow it made a world of
> >>difference. I also started having problems urinating though...then to
> >>self cathing all the time. Not good! The ureo/gyn said I had nerve
> >>damage. I started to waste away.....off to Germany and my hero...Dr.
> >>Daniel Kruschski. When he preformed my adhesiolysis he found my poor
> >>bladder attached to my liver and streched across to my bowels. 36 hours
> >>after surgery I asked to leave to hospital as I felt brand new
> >>again....still having problems peeing...Dr. K. said take off the
> >>patch...well I was terrified to but when I did I had no more problems
> >>peeing anymore. You see if you read the insert of the patch you will
> >>find one of the side effects is urinary retention from my experience it
> >>is big time retention. Before I went to germany I had gone to ER
> >>locally as I could not pee at all...they cathed me and told me to come
> >>off the patch...I did...then tests at the uero/gyn...after it was
> >>decided it was nerve damage they said go back on the patch and well the
> >>next thing I know I was in Germany. Between the distortion of my
> >>bladder internally with the addition of the patch and the side effect of
> >>urinary retention...all the pushing in the world would not produce pee.
> >>As to being addicted to the patch..I know many worry about this...
> >>The first time they told me to take it off it was difficult and I went
> >>thru tollerable but frustrating withdrawl symptoms but the second time I
> >>went off...48 hour after surgery with Dr. Kruschinki I took the patch
> >>off and never looked back, no withdrawl, I was no longer in pain! I am
> >>happy to say that thru the slew of meds I was on I am down to only 3
> >>pills a day total and will soon be weaned off pain meds and others soon.
> >>Sounds like you have a good doc that believes in your pain if you are
> >>given duragesic patch. If this was your surgeon as well then they are
> >>pretty sure I would imagine that you are in pain when they saw the mess
> >>caused by ARD inside you. Dearest Heidi, Please, when you feel well
> >>enough or have someone willing...get your operative report and read
> >>through it. Secure your surgical consent form too while your at
> >>it...always good to have for every one.
> >>You will see better exactly what happened to you during surgery....I
> >>find you get a little chat from your surgeon after you wake up from
> >>surgery...while you are throwing up or whatever post surgical la la
> >>state you are in, they usually tell you how well the operation went and
> >>they'll see you in 6 weeks for a check up....hmmm. Thats usually good
> >>enough for most folks but...
> >>I think you'll be surprised by your op report. If you do find yourself
> >>soon in pain again I would not hesitate to get the best and highest
> >>success rate adhesiolysis from Dr. K. in Germany...you will see his
> >>information in the sponsor section under Uero/Gyn. Contact Lisa ( his
> >>IAS liason with contact info in the sponsor information) and send your
> >>op reports to him.
> >>He'll tell you if he can help you...most likely he can. I worry so that
> >>many have adhesiolysis here in the states as they are desparate to be
> >>out of pain. We in the states are no where near being able to perform a
> >>proper adhesiolysis and for now all hope for relief lies it Germany...it
> >>is your best chance to become pain free and adhesion free...for less
> >>that the price of say a hyundai. The highest success rate of all, the
> >>best surgeon who preform adhesiolysis, gassless laparoscapy ( the gas
> >>itself can cause adhesion growth)...I can't say enough about that..no
> >>gas pain after surgery and of course proper application of spray gel.
If
> >>I can be of further service to you please do not hesitate to caonact me.
> >>Love,
> >>Dawn
> >>>--
> >>>Heidi
> >>>
> >>--
> >>I'm no doctor, just a fellow sufferer like you but I hope you consider
me a new friend.
> >>
>
> --
> I'm no doctor, just a fellow sufferer like you but I hope you consider me
a new friend.
>