Re: 'Spontaneous' Adhesions

From: Lillian (lilimsvirgo9459@wmconnect.com)
Tue Apr 22 16:23:11 2003


At Tue, 22 Apr 2003, Nina wrote: >Dearest Nina,

I tried Depo provera injections for a few years prior to removing my last Ovary And it did help for a short while. But to tell you the truth there is nothing that will stop adhesions from growing and nothing to stop their pain but pain meds. I hate being the bairer of bad news but unfortunately we are all in this sinking boat and it seems like the water is getting deeper and deeper. Much Luck and Love goes out to you. Lillian

>Started "getting sick". About 4 years ago. OB tried me on all
>conceivable oral contraceptives in order to control what he anticipaited
>was Endo. Then 20 months ago appetite was so poor and pelvic pain so
>bad went in for Lap. He was surpriesed that instead of Endo it was
>normal scar tissue. He found 3 "massive" adhesions binding my bladder
>to the pelvic floor and wrapping the bowels. Problem is I had never had
>previous surgeries. About 1 month later again started feeling that oh
>so familiar tightness in RLQ. Went in for 3 mo F/U and he told me that
>it was not possible to grow back so quickly. 6 months after Lap went
>into IBS crisis and have been dependent upon Miralax daily ever since in
>order to maintain bolwel function. Around the same time began having
>excrutiating upper back pain that had such a crushing sensation that it
>would make me sick and affect my ability to breathe. Pain would wrap
>around to my chest. During the entire time flipped from one rx to
>another to control growth and symptoms. 2 weeks ago went in for my
>second Lap in 2 months. Results were 2 hand size adhesions that had
>adhered my R and L lower bowels to the abdominal wall, and a 2 handed
>size piece that wrapped from the colon, around the intestines and to the
>ovarian tubules.
>
>It is now 2 weeks post, and I am having RLQ cramping again. The other
>concern is that the back pain has not really subsided since the lap. MD
>at F/U appt said it is because "they had to beat me up inside" to remove
>tissue and tio give it 4-6 weeks.
>
>First question is: Is it possible for adhesions to form further up the
>back where they can not find it with a lap?
>
>Second question is MD has recommended Lupron or Merian (an IUD) or Depro
>to put me into early menopause. I am 30 years old w/ the intention of
>getting pregnant at some point in the future, but do not want to have to
>rush into it just because of adhesions. I have no chidren yet and have
>been dreaming of mine since I was 9 years old. Is artificial menopause
>the common solution to spontaneous and unexplained adhesions? Until we
>make a decision I continue on Miralax and Ortho
>
>Any help would be appreciated
>
>--
>Nina
>


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