Re: Waiting for response from Nestle on Omega 3
From: Dawn (dawn@naisp.net)
Fri Apr 25 06:28:32 2003
Dear Nina,
I do not mean to dissapoint you but I do not think any dietary
supplement is going to help us until more is understood about why
adhesions form. Some of the best minds in the world are working to
tackle this dilemma. Adhesions can start to grow even as you lie in
surgery. Surgeons have actually seen them grow during lengthy
procedures. 7-10 days and they may well be already formed. ( hence
second look laps after 7 days to look for denovo and reformed adhesions)
It is your bodies natural response to an antogonist introduced into the
area. If anything , I would think an antiimflamitory would do best in
the actual setting where the adhesion would form and not through the
digestive tract where effect could be diluted....to take a dietary
suppliment for the antiimflamitory response you are thinking
about....basing it on the antiimflamitory results of chrohns or IBS.
I don't know...
Please...you go and prove me wrong, I'd be all for that.
Warmest wishes,
Dawn
>
>Was born 1 1/2 months preemie weighing in a little over 2 lbs. Guess I
>came out a little bit of a fiesty fighter ;) Have also learned from a
>lifetime of experience to be highly educated in what is going on
>medically. We are our best advocates. Also have this brain that
>questions everything from a million angles and never tends to shut off.
>Not all MD's appreciate these qualities, and it's a pain at 2am let me
>tell you, but I firmly believe it is one of the reasons I am still here
>today.
>
>Everyone said that It couldn't be done,
>But she with a chuckle replied,
>That maybe It couldn't, but she would be one,
>Who wouldn't say so til she'd tried.
>So she buckled right in, with the trace of a grin
>On her face. If she worried she hid it,
>She started to sing,
>As she tackled the thing,
>That couldn't be done.
>And she did It.
>
>have a good night,
>Nina
>
>At Thu, 24 Apr 2003, winged phantom wrote:
>>
>>Cool, Nina. You're really on the ball! Wouldn't it be great if you just
>>solved the mysteries of adhesions? Better get a liscense on it! lol
>>wr
>>
>>At Thu, 24 Apr 2003, Nina wrote:
>>>
>>>Just contacted Nestle Nutritionals in England. Waiting for an email
>>>back. Asked if there has been any evidence to show that TGF-B2 would
>>>help with our situation, and if so what would be a clinically beneficial
>>>amount and where can we get it. The supplement for people w/ Chrohns is
>>>300 kcal per 8 oz, w/ a theraputic dose being 2-4 servings a day for
>>>Chrohns. That's an awful lot of extra kcal. Boyfriend has horrendous
>>>Chrohns and AS and says it tastes just like milk. Supposedly the
>>>hormone is from unpasturized milk and cow colestrum, yummy. Wonder if
>>>we can't get it somehow in pill form. The liquid supplement also
>>>requires MD supervision, which an MD most likely will not agree to w/out
>>>a clinical trial proving eficacy in abdominal adhesions. Also asked if
>>>they felt Omega3 would help, recommended clinical dose, and how to
>>>obtain that.
>>>
>>>We'll wait and see how much of this info they can give us w/ out being
>>>bound up legally.
>>>
>>>At Thu, 24 Apr 2003, Sue wrote:
>>>>
>>>>All I can say, is I read something that after a lap, the adhesions can
>>>>reform and attach in 7-10 days, I have a lap done in march and had 10 days
>>>>will no pain, now they are back. it is very frustration.
>>>>
>>>>I would like to look up more info on this fatty Omegas Hey I will try
>>>>anything that may help!
>>>>
>>>>--
>>>>Sue
>>>>
>>>>>>>>>----- Original Message -----
>>>>From: "Nina" <jeanninemonfre@yahoo.com>
>>>>To: "Multiple recipients of list ADHESIONS"
>>>><adhesions@mail.medispecialty.com>
>>>>Sent: Thursday, April 24, 2003 4:24 PM
>>>>Subject: Omega-3 fatty Acids
>>>>
>>>>> OK, so I am the new kid on the block, and have a question that I could
>>>>> not find an answer to while searching the database. Seems to me that
>>>>> all our adhesions are, in simplest terms, is an uncontrolled and
>>>>> exagerated inflammatory response. For whatever reason our bodies are
>>>>> saying, hey, there's something we have to heal here. If this is the
>>>>> case has anybody had any luck with Omega-3 Fatty Acid (EPA)
>>>>> supplementation to help reduce the inflammatory response? Studies show
>>>>> it helps in some types of arthritis. Another micro is TGF-B2 (don't ask
>>>>> me where it can be gotten in sole supplement form) that is known to
>>>>> significantly decrease the inflammatory response in people with Chrohns,
>>>>> not only in the GI tract but also in those w/ AS in the ligaments and
>>>>> connective tissue strictures.
>>>>>
>>>>> Has anybody had any luck with oral micro supplementation as an attempt
>>>>> to control the source of the growth? Or am I just dreaming a simple
>>>>> dream?
>>>>>
>>>>> I also read somewhere that prophelactic use of antihistimines, steroids,
>>>>> and anti-inflammatories can help inhibit growth. Has anybody had any
>>>>> luck with this method. My concern is being only 2 weeks post lap I want
>>>>> to be as proactive as possible WITH PROVEN METHODS in heping to minimize
>>>>> future growth. Seems to me the method my OB suggested of placing me
>>>>> into early menopause really hasn't worked well for most that are writing
>>>>> in.
>>>>>
>>>>> Thank you all for your patience with all my questions,
>>>>>
>>>>> Nina
>>>>>
>>--
>>I have no history of abdom. surgery; have had a few cysts
>>Fall 2002- extreme pain and constant bloating
>>1/2/03- laparoscopy, hysteroscopy, and D&C
>>2/12/03- TAH/BSO for adhesions caused by non-symptomatic
>>endometriosis (only dx'ed on pathology report)
>>Now?- rigid belly; abdominal pain, tenderness and
>>bloating; plus continuing bowel problems likely caused
>>by new adhesions
>>
--
I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.