Re: Surgery Outcome

From: Millie (milliem@citlink.net)
Sun May 4 19:50:55 2003


Brandi, Oh, how I know exactly what you mean about wondering if you'll end up in the looney bin. So many days I wonder the same thing about myself, but I'm too stubborn to give up my remaining sanity. ( A little humor, there!!!) Don't rush into having a hyst. For one thing, you will most likely get adhesions worse than you may have right now. And most Drs. cringe and clam up if you ask them about adhesions. The people closest to us don't want to listen to us when we say we are in pain. You can send me a personal email whenever you wish. Take care and feel better. Millie.

>----- Original Message -----
From: "Brandi " <jinxedfairy@aol.com> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Sunday, May 04, 2003 10:55 AM Subject: Re: Surgery Outcome

> Millie,
> Wow I am so sorry............I have had the worst weekend of my life so
> far...........I dint feel the worst of the surgery until two days after
> the surgery, and WHAM bleeding cramping....Unfortunatly I was unable to
> stay ahead of the pain, and never caught up with it at all... in the
> end I was able to go to sleep..................this morining I was able
> to find relief with one pill, (so far) and am hoping for getting the
> heck out of this bed!!! :) My family (one 19 year old daughter 1
> husband) do not seem to know how to act, Yes they are taking care of me
> but they seem overwhelmed that I am not up and livley.....God knows I
> have tryed to excape the bedroom and go downstairs only to be chased
> back like a child (SIGH)..... My mind drifts to What my llife might be
> like if I go thru with the Hyst.......Will I struggle even more with
> pain that will be As I see a life sentence to pain.........Will I have
> to check myself in to the looney bin as the thought of going thru an
> early menapause, In the precence of my Husband I have nicknamed clingly
> bear, or my daughter who we will just call greatly obsessed with
> self.......... At his point there is not much time left for my thoughts
> as We looked at the pictures he brought to expain the extensive dammage
> to my insides.. So now It just a matter of WHEN.
> It is really nice to be able to share, and comfort others who have the
> same Problem, I find it really hard to even get those closest to
> undersatand how hard this is for me, they only hear Sick.........If what
> I face is what you live every day, then lets keep in touch and compare
> notes !!
> Brandi
> P.S sorry so long (i do ramble) To long in bed LOL
>
> At Fri, 2 May 2003, Millie wrote:
> >
> >Brandi,
> >Did the Dr. tell you just how severe your endo is? I think there are
four > >classes, with class 4 being severe endo.
> >I had a TAH/LSO in 2001, and I had only minimal endo. There was no need
for > >her to remove all the organs that she did. She also lysed adhesions and
> >placed Interceed, an adhesion barrier, which didn't work.
> >Brandy, I am not a medical professional, but I am an adhesions sufferer,
and > >more surgery will most likely make the adhesion problem worse. Many
Drs. > >won't tell you that.
> >So many Drs. don't believe us when we tell them we have pain. Then they
want > >to do surgery and no matter what you ask them not to do, once you sign a
> >surgical consent form, they have the right to remove whatever they see
fit > >to remove, as you are under anesthesia and unable to stop them.
> >Millie.
> >

>> >>----- Original Message -----
> >From: "Brandi " <jinxedfairy@aol.com>
> >To: "Multiple recipients of list ADHESIONS"
> ><adhesions@mail.medispecialty.com>
> >Sent: Thursday, May 01, 2003 8:51 PM
> >Subject: Surgery Outcome
> >
> >> I made it thru the surgery.......but the bad news is that they have
> >> determined there was SO much adhesions and Endo that I have to have a
> >> full Hyst??
> >> This coming from the doc who said If you have Endo (SIGH).....He told
my > >> husband he was sorry that he dint listen to me about pain
> >> now............
> >> So as I am laying here...Wondering if this will truely be the answer.
> >> Thank you all for your kind words and support, I am truely touched.
> >> I have a question......Is there alternative hormone therapys out
there?? > >> I am 38 and now am worried about the statisics of breast cancer.......
> >>
> >> --
> >> Brandi Lyn Lee
> >>
>


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