Heather
>----- Original Message -----
From: "Helen Dynda" <olddad66@runestone.net>
To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
Sent: Thursday, June 12, 2003 12:30 PM
Subject: Re: adhesions/gallbladder
> Thank you, Linda, for expressing so well the way you as well as many of
> us (including myself) have been treated by not only doctors but by
> so-called friends, who've drifted away - leaving us with the feeling
> that we are alone...that no one understands or cares!!
>
> Love, Helen
>
> ~ ~ ~ ~
>
> At Thu, 12 Jun 2003, linda garcia wrote:
> >
> >Rick,
> >Sorry to hear about all your troubles. You must know that you are not
alone, you are not a whiner or psycho. I had 3 c-sections and for 7 years
was told that I must be depressed, My husband must beat me, I must need a
break from my kids. I have been through the same thing for years. It is
very frusterating and it causes us to give up on looking for any help.
These docs put their thoughts of us being depressed and so on in our records
and then it makes it almost impossible to get any treatment whatsoever. I
had a doc tell me that I was addicted to narcotics and she jus tblurted this
out in the ER during one visit, when I got my records she stated that she
discussed the possiblilty of addiction with me. There was no discussion
just an accusation, this has followed me around. I finally got to a
different town different ER and they admitted me to surgery within a week
and found that I have severe dense adhesions. After that surgery I told her
the pain was back and she !
> said there
> > was nothing else to be done. I did find a doc here at a free clinic
that started me with pain management. It saved my life.
> >I understand when you say "friends disappear" because they do not see
physical symptoms like vomiting or pale skin, stuff like that, so they
decided that we are drug seekers and just looking for sympathy. I hope that
this doesn't happen to any of those that say we are nuts, cause this is an
awful way to live, but no one could know what we go through until they walk
in our shoes just one day. Have you tried to get into contact with Dr.
Daniel Kruschinki? He is the best(ambidextrious too) surgeon in the world
for adhesions, Harry Reich, is in PA and he has trained with Dr. Kruschinski
so he knows the best technicques. Try to get into touch with this Doc in
Germany as this is the only hope for people like us. This doc is so kind, I
emailed him yesterday morning with my questions, fears and concerns and I
had a response later that day. To get in contact with him, go to
http://www.endogyn.com and he may be able to help. I have looked into air
fare, I live in Wyoming !
> and Denver is the
> > closest airport for me, and the airfare is like 250 round trip. This is
our only hope when we suffer adhesions.
> >I was in the process of suing the doc that accused me of being an addict.
She had been in the OR as the assistant surgeon during the delivery of my
baby in March 2000 the removed adhesions after delivery, so she knew that
they came back. I just can't find a doc to stand by me. For 3 years after
this statement being in my medical records, no one would treat me. Dont'
take this treatment from them lying down, you deserve the best of care,
fight for your rights and your health.
> >sorry this is so long, but you have found a wonderful support group here
at the IAS, There is another website http://www.bombobeach.com
that has more info.
> >Take care
> >Linda Garcia
> >fellow sufferer.
> >
> >Live life to the fullest today because there is no guarantee that there
will be a tomorrow
>