Re: Annemarie, Where are You?

From: Carolyn J Meadows (lilly-lady@insightbb.com)
Sun Jun 22 13:16:12 2003


AnnMarie, Pain makes a monster out of all of us my dear girl, we get depressed when we can not live and work normally. So try not to be to hard on yourself, we all get like that sometimes when in pain, I know I was very cross. Then we have the doctors telling us adhesions don't cause pain, and nothing wrong with us. I have left doctors office crying, and feeling so hopeless and helpless. ( it was always, take her to a shrink.) Hang in there AnnMarie, these ladies care. Myself and many others are doing things to make those in charge more aware of ARD. Love carolyn

>----- Original Message -----
From: "AnnMarie" <sweetlilqt913@aol.com> To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net> Sent: Sunday, June 22, 2003 12:03 PM Subject: Re: Annemarie, Where are You?

> Thank you sherry. I really am aswwet girl, butsome times feel like this
> pain is making a monster out of me. Agian thank you for keeping me in
> your prayers I will do the same for you.
>
> At Sun, 22 Jun 2003, AnnMarie wrote:
> >
> >DEAR ANNMARIE,
> >SAW YOU POSTED AND JUST WANTED TO LET YOU KNOW I WAS THINKING ABOUT YOU
AND > >WILL SAY A LITTLE PRAYER FOR YOU TONIGHT.
> >YOU SOUND LIKE SUCH A SWEET GIRL AND SOOO YOUNG TO HAVE ALL THE PROBLEMS
YOU > >DO. I , TOO , SUFFER FROM ADHESIONS AND KNOW ALL TOO WELL THE PAIN YOU
ARE > >GOING THRU.
> >YOU ARE IN MY THOUGHTS,
> >SHERRY G.
> >-----Original Message-----
> >From: "AnnMarie" <sweetlilqt913@aol.com>
> >To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
> >Date: Sunday, June 22, 2003 12:03 AM
> >Subject: Re: Annemarie, Where are You?
> >
> >>I'm not sure if you were asking aout me or if there is another AnnMarie
> >>here.
> >>well if it was me, thank you very much for askin about me. I still come
> >>on the site every night, I just havent posted a message in a while,
> >>because I have been so sad and upset lately. I have just been thinking
> >>about how I had so many dreams and high expactaions for myself, and
> >>wondering if they are ever gonna come true. Since I was four I wanted
> >>to be a nurse so I can help people.But I figure how in the world am I
> >>ever going to be able to help people if I cant even help myself and need
> >>to take medication . I'm not even sure how long I have had adhesions,
> >>since I had my first abdominal surgery when I was 5 weeks old,for my vp
> >>shunt and had a few more from then untill I was in 5th grade the after
> >>that all heck broke loose.I had tons of surgeries on my shunt and since
> >>7th,grade have had many gyno surgeries with a total of 23 surgeries.and
> >>my mom
> >>told me I always complained "my belly hurt." and up untill last year I
> >>had alot of pain which was told was from "massive adhesions " that
> >>"adheared everythin to everything, and there wasnt a single organ in my
> >>pelvis that was free. after having 4 surgeries in 2 months because
> >>everytime I had surgery on my shunt they would close me up and the
> >>abdominal incsion would got infected all over agian, and that was july
> >>of last year (2002)with the longest hospital stay being 37 days, plus
> >>going home on IV meds for 2 months after. So my first summer after
> >>graduatin high school(I graduated june 7th 2002) i spent in the hospital
> >>and at home hooked up to an IV. So I expected to start my way on my
> >>dream to be a nurse this summer and start taking summer classes little
> >>did I know that starting last december the pain I used to have alot
> >>turned into every day horrible pain that I need to take medication for,
> >>and because I have had so many meds from past surgeries and havea very
> >>high tolerence to them, nothing seems to work, well. I'm on 40mg of oxy
> >>contin and max of 2 a day of oxycodone IR for breakthrough pain, and i
> >>still get ons of break through pain and can never sleep. the meds dont
> >>make me sleepy at all.I'm also on 50 mg of zoloft for anxity and i was
> >>on 300 mg of neurontin but it made my legs hurt so bad and made my hands
> >>tingle and go numb, so i only take 100 sometimes 200 mgs o it now.I just
> >>feel like I'm never gonna be a normal person nevermind a norma 19 yr.
> >>old. and eveything I've always wanted t do is never going to happen.
As > >>far as gettin my pcp to give my insurence permission so they will cover
> >>it for me to go to PA to have surgery with D.r Gerhart and hopfully Dr
> >>reich too, I am getting so fusterated. I dont know what else I can say
> >>or do to get him to let me go. I havent even made my next follow up
> >>appt.to talk abou my meds untill I get to the pain clinic july 11th
> >>cause I'm afriad when I go he wil ask me how the meds r workin and when
> >>I tell him i still have alot of break thru pain he will get mad and just
> >>takeme off all the meds, and then i will have nothing. I dont know my
> >>next appt, I am going to take my mom with me since she canbepersistant
> >>when she needs to be. I just wish he's realize that I want to live a
> >>normallife someda and make all my dreams come true while I still can and
> >>have a family somday. I know i've said this before but I'm sorry to cme
> >>on here and complain and write a long boring book. I just dont know hat
> >>else to d anymore, I'm so so sad and fusterated an upset, I have been
> >>talking with Dawn ose and she helps SOOOO much, just by being there, and
> >>se actually got me info n a uro/gyno that i am going to go see after i
> >>go to the pain clinic, but she has her own life,and is going thru some
> >>things right now and I feel bad bothering her with mine. Well I guess I
> >>will stop boring everyone and complaing ad go lay in bed and not fall
> >>asleep ( haha) I hope everyone is doind alot better them I am and I wish
> >>everyone pain free days ahead.
> >>
> >>At Sat, 21 Jun 2003, Sally Grigg wrote:
> >>>
> >>>Dear Annemaire, How are you doing? Did you post and I missed it?
> >>>I hope you're okay. Sometimes I get busy, though I try to check the IAS
> >>>Board everyday, sometimes I don't always succeed. Anyway, thinking of
> >>>you.
> >>>Love, Sally Grigg
> >>
>


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