At Mon, 23 Jun 2003, Karen Steward wrote:
>
>Maria,
>
> I know your message is for Katherine......but I am sooooooo
>bothered about you going for more surgery in the States.
>My daughter and I flew to California last September to a very
>popular "world renowned" surgeon.........she had surgery.........
>her "recovery" time was 12 weeks in BED after we returned
>home...........she got so much worse after that surgery!!!
>
>Please think long and hard before subjecting your body to
>surgery in the US.......so very, very few can report good
>results, as the US surgeons use CO2 (causes adhesions to form
>in areas they are not even working on!!!)...........there is no
>SprayGel available to apply once the adhesions are taken down.
>
>You state that you are a complicated case....and you have had one
>doctor turn you down............a complicated case needs a
>surgeon that is skilled in handling complicated cases!!!
>Dr. Kruschinski in Germany has handled many complicated cases!
>Please e mail him before you submit yourself to more surgery.......
>he will be glad to answer you.............
>
>I am so sorry to report that many a doctor will wheel you right into the
>operating room in the US because they make money doing so.
>It is sad but true that they KNOW the risk of reformation of adhesions
>is HIGH...........but most will never being that fact up in discussion.
>You must realize, along with everyone reading, surgery is their
>business, regardless of your outcome....................
>
>As you well know, adhesion pain is a HUGE problem...........and
>currently the majority of success stories are coming out of Germany.
>Dr. Kruschinski does not use CO2.........and he is VERY talented in
>bringing the patient to an adhesion free state!
>
>I can give you a list of people to email and ask about their surgeries
>with him..........I know I sound like a broken record, but I made a prom se
>in prayer that I must keep.........if my daughter EVER became well after 14
>miserable years, I will share her story so others can be free........... .
>a lot of people that have regained their lives do not post very often... s
>they are out enjoying life again (as my daughter is) and they are making
>up for lost time...........................................so here I am,
>one more time..............sharing with YOU..........
>
>Sincerely,
>
>Karen
>
>-------Original Message-------
>
>From: adhesions@adhesions.org
>Date: Monday, June 23, 2003 10:37:07 PM
>To: Multiple recipients of list ADHESIONS
>Subject: Re: Katherine wrote on June 22, 2003
>
>This message is for Katherine wrote June 22, 2003. My name is Maria and
>like you I am suffering from chronic abdominal pains for the last 3
>years now. I have been seen and done all kind of procedures on me and
>also got all kinds of opinions from different surgeons. And all of them
>told me "adhesions do not cause pains", and they are all wrong! They
>just don't have no idea nor understand how this is causing our daily
>lives. I have been suffering from depression and anxiety because of the
>pains I am having. I am on all kind of high narcotic pain medications.
>I even went to pain management and they did something to kill the pain
>by putting needle on my back all the way to my abdomen, and boy I was in
>total pain! They had to do it again the second time which the pain got
>worst. I've been admitted to the hospital so many times cause of the
>pains and my stomach distented looks like I'm 6-7 months pregnant. But
>all they did is just keep shooting me with pain killers, you name it I
>already had them all. My husband co-worker referred us to one of the
>best doctor here in Las Vegas, Nevada. And he is a great doctor. He
>believes what I am going through and helping me find a surgeon who will
>do "Adhesiolysis." I almost had a surgery here but the surgeon
>backed-out. He told me that it will be very complicated to do an open
>surgery, since I had 8 different surgeries in the past including
>hysterectomy due to severe adhesions. So, I did a research myself on
>the net. I found one in Pennsylvania who specialize on "Adhesiolysis"
>or Minimally Invasive Surgery. But it's too far for me to go to. And
>luckily, 2 weeks ago I found one in Riverside, California which I'm
>going to see for consultation early next month and he will let me know
>if I am a candidate for the procedure. He specialize on this kind of
>health situation and also he does bariatric surgery. So, once I see him
>next month, I will let everyone of you knows the outcome of my
>consultation. Maybe that will help for those who's in need of help that
>lives in California. I can relate to all who have this kind of
>situation, since I am one of you...suffering from it and seems like most
>doctors do not understand. I hate it when most of them told me that I
>will have to live with this pain and take pain killers for the rest of
>my life. NO! That's not the answer for me...I am keeping my finger
>cross that this doctor will be able to help. So I can go back to my
>normal life, be able to work again and focus to my family and not the
>pains I am having right now. You might also ask your doctor if they can
>prescribe you an "Actiq", this medication is like a lollipop and it does
>work great. Goodluck to all of us who is suffering from this illness.
>Someday, we will be able to do the things we used to do and enjoy life
>again.
>Sincerely,
>
>--
>
>Maria T. Jackson Las Vegas, Nevada
>
>At Sun, 22 Jun 2003, Katherine wrote:
>>
>>I explained the pain I've been having in my right side, the burning the
>>pulling, the stinging. I explained it's getting worse not better and
>>that it happens every time I stand up for more than a few minutes. (My
>>doctor was out of town so I saw one of her partners.) I also explained
>>that my doctor found adhesions on the right side during the laparoscopy
>>As it turns out, I have a uterine infection along with the adhesion
>>pain. White blood cells were elevated and I had a lot of
>>pain/tenderness in my uterus. I still have the pain from adhesions
>>though and I've been documenting how long it lasts, the severity, etc.
>>have had pain that lasts from five minutes to several hours every day
>>this week. And I know it's from the adhesions because it's on the right
>>side. (The other pain was on the left side and in the center.) I don't
>>have the money necessary to make a trip to Germany at this time and I
>>don't even know if it's to the point that I need to go to germany yet.
>>I'm sure this is only going to get worse, not better. It's gotten so
>>much worse just in the last two months. I don't know what else to do
>>except to go back to my doctor and discuss my options.
>
>.
>