>----- Original Message -----
From: "Sally Grigg" <LostCst@mcn.org>
To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
Sent: Tuesday, June 24, 2003 10:31 PM
Subject: Re: Katherine wrote on June 22, 2003
> Hi everyone, Well, I know you all are in pain and its very hard, but I
> have to say something bluntly. "Its too far to go" is something that I
> hear all the time. When you stop and think, you have only one body and
> a bad surgery can make
> you worse. There is no distance "too far to go". I know the money is
> hard if not next to impossible, but it is possible. The distance is not
> impossible, planes take you to Germany in less than a day (hours from
> the East coast.) Your
> body is more important than anything, I know children, and our parents
> are
> important, but what good will we be to them if we are half dead. Sorry
> to be so pushy, but its so important. Please hear me, there are
> probably only four or five really good adhesion doctors in the whole
> world. I know that sounds incredible but its true. Just because the
> institution is world famous, does not mean they will have a good
> adhesions specialist. Sorry to be so blunt. I say this out of love,
> Sally Grigg
>
> At Mon, 23 Jun 2003, Karen Steward wrote:
> >
> >Maria,
> >
> > I know your message is for Katherine......but I am sooooooo
> >bothered about you going for more surgery in the States.
> >My daughter and I flew to California last September to a very
> >popular "world renowned" surgeon.........she had surgery.........
> >her "recovery" time was 12 weeks in BED after we returned
> >home...........she got so much worse after that surgery!!!
> >
> >Please think long and hard before subjecting your body to
> >surgery in the US.......so very, very few can report good
> >results, as the US surgeons use CO2 (causes adhesions to form
> >in areas they are not even working on!!!)...........there is no
> >SprayGel available to apply once the adhesions are taken down.
> >
> >You state that you are a complicated case....and you have had one
> >doctor turn you down............a complicated case needs a
> >surgeon that is skilled in handling complicated cases!!!
> >Dr. Kruschinski in Germany has handled many complicated cases!
> >Please e mail him before you submit yourself to more surgery.......
> >he will be glad to answer you.............
> >
> >I am so sorry to report that many a doctor will wheel you right into the
> >operating room in the US because they make money doing so.
> >It is sad but true that they KNOW the risk of reformation of adhesions
> >is HIGH...........but most will never being that fact up in discussion.
> >You must realize, along with everyone reading, surgery is their
> >business, regardless of your outcome....................
> >
> >As you well know, adhesion pain is a HUGE problem...........and
> >currently the majority of success stories are coming out of Germany.
> >Dr. Kruschinski does not use CO2.........and he is VERY talented in
> >bringing the patient to an adhesion free state!
> >
> >I can give you a list of people to email and ask about their surgeries
> >with him..........I know I sound like a broken record, but I made a prom
se
> >in prayer that I must keep.........if my daughter EVER became well after
14
> >miserable years, I will share her story so others can be free...........
..
> >a lot of people that have regained their lives do not post very often...
s
> >they are out enjoying life again (as my daughter is) and they are making
> >up for lost time...........................................so here I am,
> >one more time..............sharing with YOU..........
> >
> >Sincerely,
> >
> >Karen
> >
> >-------Original Message-------
> >
> >From: adhesions@adhesions.org
> >Date: Monday, June 23, 2003 10:37:07 PM
> >To: Multiple recipients of list ADHESIONS
> >Subject: Re: Katherine wrote on June 22, 2003
> >
> >This message is for Katherine wrote June 22, 2003. My name is Maria and
> >like you I am suffering from chronic abdominal pains for the last 3
> >years now. I have been seen and done all kind of procedures on me and
> >also got all kinds of opinions from different surgeons. And all of them
> >told me "adhesions do not cause pains", and they are all wrong! They
> >just don't have no idea nor understand how this is causing our daily
> >lives. I have been suffering from depression and anxiety because of the
> >pains I am having. I am on all kind of high narcotic pain medications.
> >I even went to pain management and they did something to kill the pain
> >by putting needle on my back all the way to my abdomen, and boy I was in
> >total pain! They had to do it again the second time which the pain got
> >worst. I've been admitted to the hospital so many times cause of the
> >pains and my stomach distented looks like I'm 6-7 months pregnant. But
> >all they did is just keep shooting me with pain killers, you name it I
> >already had them all. My husband co-worker referred us to one of the
> >best doctor here in Las Vegas, Nevada. And he is a great doctor. He
> >believes what I am going through and helping me find a surgeon who will
> >do "Adhesiolysis." I almost had a surgery here but the surgeon
> >backed-out. He told me that it will be very complicated to do an open
> >surgery, since I had 8 different surgeries in the past including
> >hysterectomy due to severe adhesions. So, I did a research myself on
> >the net. I found one in Pennsylvania who specialize on "Adhesiolysis"
> >or Minimally Invasive Surgery. But it's too far for me to go to. And
> >luckily, 2 weeks ago I found one in Riverside, California which I'm
> >going to see for consultation early next month and he will let me know
> >if I am a candidate for the procedure. He specialize on this kind of
> >health situation and also he does bariatric surgery. So, once I see him
> >next month, I will let everyone of you knows the outcome of my
> >consultation. Maybe that will help for those who's in need of help that
> >lives in California. I can relate to all who have this kind of
> >situation, since I am one of you...suffering from it and seems like most
> >doctors do not understand. I hate it when most of them told me that I
> >will have to live with this pain and take pain killers for the rest of
> >my life. NO! That's not the answer for me...I am keeping my finger
> >cross that this doctor will be able to help. So I can go back to my
> >normal life, be able to work again and focus to my family and not the
> >pains I am having right now. You might also ask your doctor if they can
> >prescribe you an "Actiq", this medication is like a lollipop and it does
> >work great. Goodluck to all of us who is suffering from this illness.
> >Someday, we will be able to do the things we used to do and enjoy life
> >again.
> >Sincerely,
> >
> >--
> >
> >Maria T. Jackson Las Vegas, Nevada
> >
> >At Sun, 22 Jun 2003, Katherine wrote:
> >>
> >>I explained the pain I've been having in my right side, the burning the
> >>pulling, the stinging. I explained it's getting worse not better and
> >>that it happens every time I stand up for more than a few minutes. (My
> >>doctor was out of town so I saw one of her partners.) I also explained
> >>that my doctor found adhesions on the right side during the laparoscopy
> >>As it turns out, I have a uterine infection along with the adhesion
> >>pain. White blood cells were elevated and I had a lot of
> >>pain/tenderness in my uterus. I still have the pain from adhesions
> >>though and I've been documenting how long it lasts, the severity, etc.
> >>have had pain that lasts from five minutes to several hours every day
> >>this week. And I know it's from the adhesions because it's on the right
> >>side. (The other pain was on the left side and in the center.) I don't
> >>have the money necessary to make a trip to Germany at this time and I
> >>don't even know if it's to the point that I need to go to germany yet.
> >>I'm sure this is only going to get worse, not better. It's gotten so
> >>much worse just in the last two months. I don't know what else to do
> >>except to go back to my doctor and discuss my options.
> >
> >.
> >
>