You do not say where you are from, but through a network of online friends, I have a good number of physician names from all over the US and a few in Europe that are very experienced in treating HD and it's many comlications. Please feel free to email me and I'll pass the information along.
Sincerely, Karen H.
At Wed, 2 Jul 2003, wilcoxon69@yahoo.com wrote:
>
>What are the odds of finding a doctor that actually knows what he is
>doing with Hirschbrung's disease...?? We have had my son to a lot of
>them, and I have had this from the time I was born. So bad was mine,
>that I had extreme mega colon and almost died myself. Now, my 8 year
>old son is showing th same signs, and no one wants to do a darn thing
>because we have state insurance. Do I just sit by and wait for my son
>to die before any of these "practicing" physicians' do something for
>him, or is there REALLy someone out there that knows what they are doing
>with this disease...??
>
>Morris Pierce
>
>wilcoxon69@yahoo.com
>