Re: surgery ­hesions, can anyone advise me ??

From: chiggerkat@futura.net
Fri Jul 4 19:14:59 2003


GOD BLESS YOU ANNEMARIE-I'LL KEEP YOU IN MY THOUGHTS. THIS IS SUCH A TERRIBLE THINGS TO HAVE. MY PAIN IS BAD BUT NOT NEARLY AS BAD AS YOURS SOUNDS. SHERRY GRIFFIN -----Original Message----- From: "annemarie" <angelofdali@aol.com> To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net> Date: Friday, July 04, 2003 5:40 PM Subject: surgery ­hesions, can anyone advise me ??

>my story i am sure is the same as many of you on this message board.
>i am new to this site and would like to say hello to you all.....my name
>is annemarie, i live in the uk..and am 46 yrs old..
>i too have had 22 stomach operations....for adhesions...and perforation
>in the bowels...
>i too thought after my 5th op that the pain couldn't get any worse....
>you and i now know this isn't true....
>i had been to many surgeons that say that no more can be done for me,
>then i found a programe on tv showing that a fibre called sepra
>film....(rather like cling film) could be wrapped around the bowels and
>scar tissue, so that they would not be able to adhere together again....
>now that seemed to be the perfect solution, to me.
>had that done and after a 14 hour operation, sadly it didn't work for
>me....
>i have started on the fentalyn patches which i should put on every 3
>days but i do use every two days ....also have morphine .....
>i like most who have this awful problem...have not had a painfree day
>for 13 yrs....
>when i saw the surgeon that opened me up...to use the sepra film....i
>asked why it hadn't worked ........to my amazement, he replied.....one
>of those things..i am not a bowel surgeon.(COULD HAVE TOLD ME BEFORE
>!!!).....and that he did all the bowel ops that came into my local
>hospital......
>as i am with a self funding doctors surgery, i have been told that i
>cannot go to another hospital to be helped!!!
>to think i used to moan about my monthly cramps yrs ago lol
>they would be heaven now lol!!!
>i have an ileostomy...since aug 1990, they have twice tried to reverse
>as the stoma goes back into my stomach.but the adhesions are so locked
>together ..that it made it impossible to get near the double loop...that
>was left for me to have a reversal......
>i try to hide the pain...so my friends .and my family, don't see just
>how much pain i am in..but this week it has all become too much for
>me....
>no one can see the scar tissue outside the body..so do not understand
>what people with this complaint..actually go through,
>i hate to ask for help...and don't want to be a pain to anyone...so i
>keep it to myself....
>if it was flu or a short term illness ......i would be okay, telling
>people but as thei has continued for over 13 yrs iits not something one
>wantsto hear about every day.
>i say family i have one sister in the usa.and a neice, that is living
>here in london with her family for the next few yrs...
>they have there own problems to cope with,without me whinging on about
>my adhestions,,,
>is there anyone ......out there .....that knows of anyone that could
>help me....
>???
>at 46 yrs old .....and unable to work,i have an 80 yr old body(well
>inside ) ....and the pain is aging me...and feel i cannot cope...with
>this pain
>so if there is anyone reading this email, please contact me .....
>many thanks for reading this ....also for me to have a safe place to
>open up about this problem.
>hopefully they will find something to help this painful illness.
>god bless all of you that suffer too .
>
>--
>annemarie
>


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