Re: hello dear friends......from accross the water

From: Kath Findlay (kath.findlay@adhesions.org.uk)
Sat Jul 19 07:53:54 2003


Hi Annemarie,

I am curious to know if the consultant you are seeing in the UK is an adhesion specialist or just a general surgeon. I am becoming increasingly worried about the number of British people who are being urged to travel to Germany for surgery after reading on the IAS website that this is their only chance of becoming pain free. A number of these people have written to me to say that they were never told that there were any adhesion specialists in the UK and all the latest barriers available to them I.e. SprayGel, Adept and soon to be Adsurf and that this could have been an option to them before travelling abroad and having to pay for surgery that would have been free to them in the UK. Many also said that they were not being advised about how to claim for free or part payment of their treatment when they did decide to travel to Germany for surgery. I have the utmost regard for Dr Kruschinski, and Dr Korell and have helped UK members to go there but it has been after they have had all the facts made available to them so that they can make a free choice based on what is best for them and not what they are being pushed into through lack of knowledge of what is available to them in the UK. If I can be of help please get in touch.

In Friendship Kath Findlay

The UK Adhesions Society

http://www.adhesions.org.uk

Kath.Findlay@adhesions.org.uk

Please feel free to roam the UKAS website, research all about Adhesions, causes, treatment and prevention.

United we stand Knowledge is power ARD is our fight Surrender never

-----Original Message----- From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of Angelofdali@aol.com Sent: 19 July 2003 02:22 To: Multiple recipients of list ADHESIONS Subject: hello dear friends......from accross the water

hi lisa, i must admit i am getting a little confused about the two doctors names that seem to be brought up..some for .....some against....... i have been to my doctor this week and the adhesions are in my back...have 2 clots in my lung. and also (sorry to be crude) but Havant been able to make love for so long...think i am a born again virgin...due to the adhesions in my tukki(female bits) oh i do feel so bad writing that i feel so unwell, ts very hard for me to tell anyone. and feel like i am a nuisance, whinging on..... but here i go again i am on cipramil....anti depressants and although have been on them for just over a month, am so sad. if tears could heal....none of us would be on here would we. it was so kind of you to email me. the costs at the moment are far too high, as i am not working and do not have insurance, we have what they call NHS here in the uk. but. the docs are very busy and just seems to give you a scan and enema just to keep you quiet (i am NOT saying all uk doctors are the same. as mine! i have an ileostomy, and that is the oddest thing to give me an enema, as every thing goes in there ...not thru my bottom.the ileostomy (a bag) it has helped with the blockages but the adhesions are pulling the stoma back into my tummy, therefore, the faeces is going into my body. i am living on soup, and chocolate..and ice cream, cereals at the moment, as anything such as bread, or meat fish anything that doesnt sldie down causes a blockage. i am so tired...of this.... i had such high hopes for the sepra film, i was the 2nd person in the uk t have it inserted into my tummy. but the doctor told me this week. that they cannot go in any more as its like a thick wedge of cement, that would be ideal for the foundations of a house to be built on. and they cannot get in there even to divide the adhesions, so you had better get used to living with them..as no one will touch you now ... in your state, i was soooooo very,,huh......devastated, this feels very selfish of me writing this, as everyone on here ......bless you all,are in as much pain as i am, i am not used to telling friends all the details.... but i thank you all for your prayers ..and love.... i think that the thought of never finding anyone to love me ..as i am.is also making me sad, there has been times that i have met a chap,and because of the bag he has turned on his heels and walked away, you may well say ..."he wasn't worthy of my love" but with this constant chronic pain no one will want me .it also seems i will never be able to work.. oh dear i am going on a bit....sorry x i really have tried it all.even paid a healer $300 as he said he could heal me .....as he had letters from which he showed me ..how he had helped others........ anyway......you have been so kind to me,,,,,,, as i have tried everything, please if i can help anyone with any procedure(information)........please do get in touch with me....

thank you everyone........for being so sweet and helping me......these are dark days for me at the moment. but i will get tough soon as i usually do...........just taking a litle longer this time... you never know what is around the corner .......i pray......that one day ...soon...there will be something to help us all....... and a big hug from accross the water to you Lisa, and all my new special friends.......annemarie xxx


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