Thanks, Mary Lou
Please Kristie - You are correct, that is the drug. It apparently is
being
>prescribed again - under very tight control - to treat Leprosy patients!
>Often when a drug prescribed for one use, additional benefits as well as
>side effects emerge. That is often when off-label uses begin.
>
>It is difficult to find any real information regarding its off-label
>uses but here is how I THINK it applies to the off-label use of treating
>nerve pain/damage & RSD:
>
>Thalidimide was prescribed in the 1950's as a sedative and for nausea in
>pregnant women.
>A major side effect (and cause of birth defects) can be Nerve Damage.
>
>Fairly recently it was being given to cancer patients for their nausea.
>Soon after, it became apparant that it was improving the cancer patients
>severe pain as well.
>
>Although they don't know how, it has also improved or REVERSED
>completely RSD & its symptoms in some patients.
>
>There are super strict guidelines & controls in place regarding this
>drug & pregnancy.
>A female for whom it is impossible to become pregnant (uterus removed)
>can be an acceptable candidate for this drug.
>
>I am trying to learn as much as I possibly can about its use for
>pain/RSD.
>I am hoping that perhaps someone who has personal experience - or knows
>someone who has, or has had a discussion with a doctor about it could
>provide more insight.
>
>Any help is greatly appreciated!
>
>At Sun, 20 Jul 2003, Kristie wrote:
>>
>>I thought Thadlidimide was taken off the market because of what it did
>>to babies. Am I wrong?
>>Kristie
>>
>>At Sat, 19 Jul 2003, Michelle wrote:
>>>
>>>Has anyone here tried Thalidimide/Brand name Thalomid for pain? I have
>>>been able to find some technical info on the drug and a little bit about
>>>its (off-label) use for neuropathic & RSD pain. I'm hoping that someone
>>>here has (or knows someone who has) actually used it. Thank you in
>>>advance for any info or opinion offered.
>>>
>>>--
>>>Michelle
>>>
>>--
>>Let's be good to ourselves....Kristie
>>
>--
>Michelle
>
-- mary lou