Re: Some side-affects actually help!

From: Millie (milliem@citlink.net)
Wed Aug 6 17:58:23 2003


Jean, Add this as a kicker. I went to my favorite gastro's, my luck...he's on vacation. The nurse practitioner asked if I'd ever tried Zelnorm. So I said I am afraid to try it, (as due to HER gyn cutting me, and adding even worse adhesions. ) I told the NP that I know there is a warning from Zelnorm saying it's not for women who have adhesions. The NP looked surprised and said she believed that only applied to women who've had bowel obstructions. I am having a lot of intestinal and pelvic pain and problems now. I am wondering if it's adhesions, or maybe rectocele, or the like. Bowel movements are usually loose, painful if I go or not. And definitely not emptying out. Jean, did you ever have rectocele, enterocele, or the like? Millie.

>----- Original Message -----
From: "Jean (from PA)" <creative@enter.net> To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net> Sent: Saturday, August 02, 2003 1:38 AM Subject: Re: Some side-affects actually help!

> Millie,
> That shouldn't surprise you- LOL!
> "We" must do our own research.
> My 1st Gastro was my "worse" doctor ever, the one who said I had Crohn's
> Disease and everything else in the book other than adhesions.
>
> I see the commercial every day now too, still shocks me every
> time....unbelievable, that much advertising sure will put the word in
> people's heads now at least.
> JEAN
>
> At Fri, 1 Aug 2003, Millie wrote:
> >
> >Jean,
> >I see that Zelnorm ad on t.v. every day. And I am surprised they stress
not > >using it if you have adhesions.
> >And the gastro who originally fired me in 1999, actually sent samples
home > >with me when I went back to him last fall.
> >And he KNOWS I had a hyst and have adhesions.
> >Go figure that one.
> >Millie.
> >

>> >>----- Original Message -----
> >From: "Jean (from PA)" <creative@enter.net>
> >To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
> >Sent: Friday, August 01, 2003 3:06 AM
> >Subject: Some side-affects actually help!
> >
> >> Nancy,
> >> That's like with me and meds that cause diahhrea.
> >> They always laugh at me because I "ask" for the ones that cause
> >> diahhrea!
> >> They told me that was a side affect of Prilosec when I went on them and
> >> I said "Great", better than using dynamite!!
> >> I actually enjoy the flu....as long as I'm not up-chucking anyway-LOL!
> >> JEAN
> >>
> >> At Thu, 31 Jul 2003, Nancy wrote:
> >> >
> >> >My doctor let me try zelnorm and it worked well, for a while. She
felt > >> >that the "contraindication" just told us that zelnorm wasn't a cure
for > >> >the constipation that we know is caused by the adhesions. The symptom
> >> >of consipation, however, was somewhat relieved when the food moved
more > >> >quickly through my digestive system. I'd have to say it worked pretty
> >> >good for me for several months before the effectiveness diminished.
> >> >Plus, I'm sure that they adhesions have tightened in that same period
of > >> >time. The first couple of days of zelnorm were rough, but after
> >> >adjusting to the medication it was definitely better than without it.
> >> >
> >> >Be sure to discuss these issues with your doctor. I went into it with
> >> >my eyes open and I was pleased with the result, at least for a while.
> >> >
> >> >--
> >> >Nancy
> >> >
> >> >At Thu, 31 Jul 2003, Sue wrote:
> >> >>
> >> >>not causing adhesions... only if you already suffer from then! then
you > >are
> >> >>NOT to use it.
> >> >>
> >> >>sorry in a rush.
> >> >>
> >> >>--
> >> >>SueRin Ohio
> >> >>
> >

>> >>> >>>>----- Original Message -----
> >> >>From: "Dixiepeep" <kbjarvis@yahoo.com>
> >> >>To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
> >> >>Sent: Thursday, July 31, 2003 3:29 PM
> >> >>Subject: Re: Zelnor recognizes Adhesions
> >> >>
> >> >>> Just rediscovered the site. Nice new look. I know when the Zelnor
> >> >>> commercial came on and said the word adhesion they may as well have
> >said
> >> >>> my name because it really caught my attention. It is the first
time I > >> >>> have ever heard of a drug side effect causing adhesions.
> >> >>> t Thu, 31 Jul 2003, april degregory wrote:
> >> >>> >
> >> >>> >At Thu, 31 Jul 2003, Jean wrote:
> >> >>> >>
> >> >>> >>Just thought I would make everyone aware (if they didn't already
> >know).
> >> >>> >>I saw a commercial on "TV" for the drug called Zelnor.
> >> >>> >>I was in disbelief when they mentioned the people who should not
> >take
> >> >>> >>this drug.
> >> >>> >>People with ADHESIONS was on the list of people who should not
take > >this
> >> >>> >>drug!
> >> >>> >>
> >> >>> >>They actually said the word ADHESIONS...and on TV where everyone
can > >> >>> >>hear it (LOL)!!!
> >> >>> >>Wow....they can say swear words on TV (since that is how it has
been > >> >>> >>treated)....Tee Hee!
> >> >>> >>JEAN
> >> >>> >>
> >> >>> >>--
> >> >>> >>Jean (from PA)
> >> >>> >>
> >> >>> >Hi Jean,
> >> >>> >I am a ard sufferer and was in the hospital for 45 days, I was
unable > >> >>> >to move my bowels and they gave me Zelnorn and it nearly killed
me, > >> >>> >cramping pain horrible and no bowel movement, then I asked for a
> >print
> >> >>> >ou
> >> >>> >of the Zelnorn and saw that and was like , are they trying to kill
me > >or
> >> >>> >what. I am proven to have adhesions, a had small bowel
obstruction > >> >>> >caused
> >> >>> >from adhesions a year or so ago, and an adhesionlysis in January
> >showing
> >> >>> >adhesions in all four quadrants of my abdomen. Well it turned out
I > >was
> >> >>> >ha
> >> >>> >ving a paralytic ileus, it was a nightmare. Had to have a
continious > >> >>> >spinal
> >> >>> >epidural for 7 or 8 days. Anyway a couple of doctors I saw were
> >> >>> >appalled that
> >> >>> >they tried this drug on an adhesion sufferer. Sometimes I think
> >these
> >> >>> >docs
> >> >>> >do read these warnings, as I was a known ARd patient.
> >> >>> >
> >> >>> >--
> >> >>> >anthea,
> >> >>> >Do you have any information about clinical trials for spraygel at
the > >> >>cleveland clinic.
> >> >>> >
> >> >>> >I know you dont know me , Im new to the site.....but not to
> >ARD.......I
> >> >>thought somewhere in the archives cleveland was mentioned. would
> >appreciate
> >> >>any info you might have
> >> >>> >Thanks,
> >> >>> >April
> >> >>> >
> >> >>>
> >>
> >> --
> >> Jean (from PA)
> >>
>
> --
> Jean (from PA)
>

http://www.adhesions.org/forums/listcmds.htm >


Enter keywords:
Returns per screen: Require all keywords: