Re: looking at adhesion surgery. need links
From: Jenn GS (jjmail@earthlink.net)
Fri Dec 26 21:25:38 2003
Laura,
Per your request, here is a personal story.I had my first adhesiolysis
in July 2003. When I went into surgery, it was to see if I had
endometriosis. Instead they found my abdomen full of adhesions, but no
endometriosis.
I had severe adhesions--binding both tubes (though one more than the
other), wrapped around bowel, and adhered to abdominal wall (can't think
of the clinical name for this at this moment). My surgeon did remove
all of these via laproscopy with belly button and 3 bikini line
incisions.
It took me 3 weeks to feel somewhat human again, but I still had pain.
So I was sent to another doctor, a specialist in dyspaurenia. He found
that I had pudendal neuralgia, a spasm of the ani levator nerve that had
caused constant muscle spasm and tightness. I received a nerve
injection and pelvic PT, and that condition has improved.
In the time since, my every-day pain improved, but I have continued to
have deep pain with intercourse though that has improved somewhat as
well.
Now, I'm going in for another exploratory lap at the end of January as
the deep pain is increasing and starting to become every-day pain again.
Since I am trying to conceive, my doc's primary goal is to get me
cleared out and pain free for about 6 months in order to try. I told
him that I'd really like 60 years of pain free sex, and he said we'd
work on that after my pregnancy, should that happen.
So, I'm kinda in the first stages of the path you'll go down, and I'm
going in for the surgery again. I don't know what else to do. I can't
afford to travel to Europe, so I'm sticking it out with my insurance and
my doc at Johns Hopkins and hoping for the best.
I can't tell from your post if this is your first lap to confirm the dx
of adhesions, or if this is a follow up. For me, the first lap was
vital to find out for certain what was happening to my body. This next
one is important to see if they have returned--for me, and I think for
my surgeon who believes he solved my problem. If adhesions have
returned, then maybe it will spur him to do a little more research into
adhesions. If he's right and they haven't, well maybe then he'll find
out what's going on now, which may be the underlying cause of the
adhesions in the first place.
Hope this helps,
Jenn
At Tue, 23 Dec 2003, LauraKH wrote:
I want pros and cons of adhesiolysis, and some
personal stories. My GYN is trained and certified in advanced
laproscopy, so I'm very comfortble with her, and don't want another doc.
Does anyone have more information?
Anyone who has had this procedure, what is recovery time? How long in
the hospital?
Thanks in advance for any information. I want to fully research my
choiced and options before I see her on the 8th, and I want to be
informed.
Laura
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