Hi Everyone, I know there as got to be at least a few of you that can
offer me some advice on what to do as I am at the end of my rope. 10
years ago I had cancer surgery for adenocarcinoma and squamous cell
carcinoma of the cervix.I have been in pain ever since then,part due to
scar tissue or adhesions(dont know which) snaking thru my lower abdomen
and part because of alot of scar tissue on my bladder leaving me with a
neurogenic bladder.drs.said I would have to self cath the rest of my
life,but hard headed me set out to try and prove them wrong.so I am able
to go on my own but have appx.1 cup residual left in bladder after I
think I have gone( I have been this way 10 years) now the urologist has
put me on urecholine,as a alternative to the self-cath they want me to
do, but it is causing so much additional pain that I can not bear
it,laying in bed crying all day and suicidal feeling.I was not getting
any bladder infections at all before,but dr. says that much residual
can cause spasm pain.
I left a abusive husband 5 years ago and now have no medical
insurance,but am seen by the free clinic,they cannot prescribe me
anything strong enouth to control my pain,I have been thru pain clinic
before and narcotics are the only thing that seems to give me some
relief.I am seen by community mental health and they will see me for
anti-depressant(medication management) only as they say there would be
no point to therapy as we know what the problem is.Needless to say,I am
depressed over all this pain in a way I cant describe.If anyone has any
sugestions,advice or is/has been in the same boat I am I would like to
hear what non-narcotic meds have worked for you as the drs.dont know
what to do with me.thanks and sorry for the lenthy post.judi