I just found this wonderful web site tonight. And I wanted to thank
those responsible for it. It has a wealth of information. I had my
first adhesions before I had ever had any surgery. When my appendix was
taken out my parents were told to expect the surgery to take about an
hour, it took almost three hours. The doctor explained that I had a
mass of adhesions. It took him that long to remove all of them. He
explained that my appendix had been flaring up for some time, like an
infection, and had formed these adhesions. I didn't think anything else
about it for years. But after having my first son I was racked with
pain. He was only two weeks old when I had to return to the hospital to
have my gallbladder removed. I was ok for a while but then the pain
returned in my lower pelvic area. I went to the ER and was admitted,
they ran several tests and was told that they couldn't find anything on
the test so the doctor suggested exploratory surgery. It was then that
he found the adhesions. He told me they were every where and he could
see why I was in so much pain. Again I was fine for a while but then
the pain returned. To me it felt like the same pain that I had when I
had the gallbladder attack. And nothing would help it. I went to
doctor after doctor begging for releif. I had every test that there was
but nothing was showing up.The pain was also starting to change, it was
no longer following and pattern and it was happening more often. The
pain now felt different.I told my doctors this and was told it was IBS.
I didn't think it was but took all the different meds they gave me for
it. None of it worked. And I am at the point where if I hear another
doctor tell me it's IBS I will scream. I sometimes think they use that
because they don't know what else to do. I finally switched doctors to
my current Upper GI and he again ran all the test on me. He finally
said I had Cronic Functional Pain and suggested I see a surgeon about
exploratory surgery. I have seen several surgeons and none of them will
do the surgery. They tell me that if it is adhesions they will only
return if I have surgery. But my thought on this is although that may
be true it would give some relief until then. It has gotten to the
point that I am unable to get out of bed, I can't sleep longer than and
hour and half before the pain wakes me. I am missing so much of my
childrens life that it is killing me.Just today my 8 yr old asked me to
do something and I told him I couldn't right now because I wasn't
feeling well. I told him I would do it when I felt a little better. His
reply was, "You are never going to get better." I started crying because
I know how he feels. I have felt the same way myself.I live off of pain
medications, around the clock.And to make matters worse ALL of the pain
medications makes me itch!!! One doctor explained that he thinks that it
is just anything that effects the nerve ending will make me itch.
Another words live with the pain or itch. I think I would rather itch.
Anyway thank you for letting me vent, it does help.