new to this site
From: pez4me1@yahoo.com
Sun Jan 25 21:09:17 2004
Hi,
I was just researching adhesions on the web and came across this site
and wanted to say hi. I am 29 and just had my first experience with
adhesions, and it was worse than the sub-total colectomy I had 8 months
ago. I did not realize that others were going through what I was going
through, and I must say thanks because reading some of these messages
made me feel a lot less lonely.
I had severe pain, and Drs. told me it was Crohn's flare, even though I
was only 3 months post op and the operation I had was supposed to leave
me crohn's free for at least a few years. I was admitted in Nov. for 5
days, no eating, no drinking. IV steroids, pain mangement, antibiotics.
Sent home on steroids, but never got better. On the 26th of Dec. The
pain was so bad I couldn't move, I went to the ER, and they admitted me.
I hadn't eaten in about 3 days. Once again, Dr. said I was flaring.
Same routine, but this time the pain wouldn't go away. I asked for
dilauded, somthing I never do, they sent in a shrink to talk to me about
a drug problem. The doctors, surgeons, nurses, they all doubted me. I
was in so much pain, I couldn't place a finger on my abdomen without
wincing. The doctors are running every test imaginable, they even stuck
a tube down my throat because they thought my pain might be from ulcers.
Anyway, after 2 and a half weeks in the hospital with no food, and 20
pounds lost, my surgeon decided to do exploratory surgery, although he
made it very clear that he did not want to do this. I woke up the next
day with 2 small incisions, and one very large incision down the center
of my abdomen. During the exploration they found 8 adhesions, they
could not be lysed laproscopically, so they re-opened my incision from
my previous operation. The surgeon came to visit me once after the
operation, during the 2 minutes he spent with me he only talked about
how difficult it is to locate adhesions, and they had to cover all of
thier bases. I am finally home, in bed, but eating.
OK, sorry to babble, I just needed to share my fury at the medical
profession. In november, when my white count was 20.000 I couldn't eat,
and I had severe abdominal pain, they should have thought of adhesions.
None of my doctors listened to me, and they actually started to not
believe that I was in pain. I told my GI that I truly hope that the
next time (hopefully their won't be one) I, the patient who has pain,
had to quit school, 29 and rarely leaves the house, I will be listened
to.
So, thats my story, once again sorry to babble, and I look forward to
reading more of your postings.
Hope everyone is feeling as good as can be today.
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