adhesions: to Sue
From: International Adhesions Society (tracy.joslin@adhesions.org)
Mon Apr 12 21:36:27 2004
-----Original Message-----
From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]On Behalf Of
Tammy Taber
Sent: Friday, April 09, 2004 2:30 AM
To: tracy.joslin@adhesions.org
Subject: Re: adhesions
Welcome to our world, it is not a very pleasant world,
but we are able to offer support in those in times of need.
For one in the middle of what sounds like a vicious
circle of adhesion vs operations. There are a lot of
us in the same condition, mostly women, but a few men
too. The only hope we currently have is for the FDA
to pass the use of SprayGel (you can look up info on
this by typing in SprayGel into a search engine, I
believe it is manufactured by Confluent Inc) This
is an adhesion barrier that is absorbed by the body
about 2 weeks after surgery which allows time for
the incisions to heal without forming adhesions.
Nasty things!
You said that you were going to see a surgeon?
What I thing you may really need is to look for a
Dr that will be empathic and knowledgeable of
adhesions, you will most likely need the assistance
of pain meds, something like Oxycotin works
best for this type of thing because it is long
lasting and doesn't make you loopy after your
system has adjusted to it. I am raising 3 children
one of which is a teenager and I have to be able
to stay alert and able to attend conferences and
such. I take Oxycotin and find it has worked well
for me over the years.
You might not want to seek another operation
until after the use of SprayGel is approved for
use in the US, but you might need to seek the
assistance of a Dr to work with you until such
a time, to control your pain and keep you comfortable.
Have your Dr keep a look out for bowel obstructions,
or kinking of the bowel, intestines ect. there
has been a lot of talk on the message board lately
about colonoscopys, personally I'm against it
unless there is an obstruction, while the colonoscopy
can help with directly related issues, it doesn't
detect adhesions, nothing really does, not ultra
sounds or CT scans or X-rays, they can go inside
of you with laparoscopes, but even that is risky.
Well this is about all I can tell you for now, if
you have any questions, the message board is a great
place to look for answers, ideas, and support. There
is also the Adhesions Quilt which is a good place
to relate.
Hope I helped a little,
Take Care,
Pain Free Hugs and Best Wishes to you and yours,
Tammy Lynn Taber
>----- Original Message -----
Sent: Thursday, April 08, 2004 11:22 PM
Sender: suziewag@Msn.com (sue)
Subject: adhesions
I am a 47 year old female in pain everyday of my life since February
2000.
|