i have similar problems
From: International Adhesions Society (tracy.joslin@adhesions.org)
Sun Apr 25 22:11:55 2004
-----Original Message-----
From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]On Behalf Of
kimberly mcgoldrick
Sent: Sunday, April 18, 2004 11:31 PM
To: tracy.joslin@adhesions.org
Subject: i have similar problems
Hi there
I have Crohns Disease and suffer in level 10
pain several times a day, since I found out that
these episodes of didtentions and buckled over
into fetal positions are from adhesions .
Unfortunately w/me because of mal-practice
3 years ago I have lost my entire stomach,
part of esophagus, pancreas relocated and
parts removed, liver reconstructed , and feet
of my small intestines removed and ressected
in different locations. I now have malabsorbtion
will never maintain my own nutrition w/o
artificial intervention, I have a heart problem
sometimes critical during a severe adhesion
stanglelation which happens 8-10 x a day this
last one has not let up now for almost 72 hours,
I am 34 and do not have a life at all i usually
am the energizer bunny and now have lost all of
my physical abilities to do anything for my girls
and loosing my mental status. The 1st advice I
give to you is find yourself a GOOD pain management
specialist. Darvocet and percocet are not the pain
meds that are sufficient for your condition once the
pain man.. Dr gets your pain under a tolerable level
of control your whole you r body will be able to heal
some and they can focus on your real problem .
I am on SSD and have been for 2 years its a long
hard road to get it , but look into it you will
qualify and and the financial stress plays such a
major set-back in recovery believe me Ive had all
these sugeries within i year and im still fighting .
Just remember You are # 1 now if you don't treat
yourself as that you cant be there for anyone else,
because you will not have anything to offer. Take
care and be strong and don't give up . I don't know
were you are , im in the NYC area and can refer a
great pain management Dr that dos it all including
acupuncture he will figure out what treatment that
is best for you. Just write me back if you need
anymore inf. Kim
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