I am posting from the UK. I had hysterectomy with removal of both ovaries for endometriosis in 1993, when I was 27. Since then I have had 2 bowel obstructions due to adhesions, dealth with by laparotomy and insertion of Seprafil membrane. I developed pelvic pain 4 years ago, which was initi ally thought to be due to a recurrence of endometriosis while taking HRT.
However, I have now been diagnosed with Ovarian Remnant Syndrome, and am awaiting MRI and surgery. I have cyclical ureteric pain, chronic pelvic pain with exacerbations, dyspareunia, and pain with bladder and bowels. Although I am a nurse I am not able to work at present.
I would love to hear from anyone else with ORS.
Thank you,
Steph